U.S. Federal

In comparison to many other nations, the U.S. has few federal laws specifically addressing human genetic technologies. The Genetic Information Nondiscrimination Act of 2008 (GINA), which prohibits the use of individuals’ genetic information in employment and health insurance, is an exception. Similarly, while many countries have established legislation about aspects of assisted reproduction, the only federal U.S. law is the 1992 Fertility Clinic Success Rate and Certification Act, which requires fertility clinics to report standardized success rate data to the Centers for Disease Control. Unlike dozens of other countries with advanced biotech sectors, the U.S. has no federal laws regulating human reproductive cloning or inheritable genetic modification. However, the FDA has asserted authority over practices including human reproductive cloning, “three-person IVF,” and inheritable genetic modification; the National Institutes of Health makes decisions about research funding; and Congress has exerted some control over research involving human embryos through budget riders.

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And she isn’t the only one.

Last year, a 77-year-old woman traveled to a clinic in Georgia to have stem cells injected in her eyes. She came in hope of a cure—or at least something that could help her macular...

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As CRISPR/Cas9 (clustered regularly interspaced short palindromic repeats–Cas9) and other gene-editing technologies hasten the feasibility of effective somatic and germline genomic manipulation, an international panel of genetics groups has weighed in on some of the thorniest ethical and scientific implications...

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Four rolled up dollar bills are planted in an upright position in soil. A gardner's tool is blurred in the background

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Trump looks with his eyes scanning to his left, as he speaks in front of a microphone.

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