CGS encourages responsible uses and effecitve governance of human genetic and assisted reproductive technologies

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Civil society calls for “International Summit on Human Genome Editing” to condemn gene-edited baby claims and experiments

By Center for Genetics and Society; Human Genetics Alert | 11.29.2018
Press Statement

In a statement released today, more than 100 civil society organizations, public interest advocates, scholars, health practitioners, scientists, and others call on the organizers of the Second International Summit on Human Genome Editing to clearly condemn the actions of researcher...

Human Genetic Modification

Gene-edited babies: no one has the moral warrant to go it alone

By Marcy Darnovsky and Katie Hasson, The Guardian | 11.27.2018

Op-Ed

The fierce global controversy over whether to alter the genes of future children and generations just got fiercer. On the eve of a high-profile scientific meeting in Hong Kong on human gene editing, the Chinese researcher and biotech entrepreneur He...

Technologies

The Chinese gene-editing experiment was an outrage. The scientific community shares blame.

By J. Benjamin Hurlbut, Sheila Jasanoff and Krishanu Saha, The Washington Post | 11.29.2018

Aggregated News

This is the experiment that was not supposed to happen.
Technologies

Claim of Genetically Modified Babies: If true, a grave abuse of human rights

By Center for Genetics and Society | 11.26.2018
Press Statement

Chinese scientist Jiankui He has announced the birth of twin girls whose DNA he claims to have altered using the...

Human Genetic Modification

Biopolitical Times

The Scandal and the Summit: Reactions to the Announcement of Gene-Edited Babies

By Pete Shanks | 12.07.2018

The Second International Summit on Human Genome Editing was held in Hong Kong on November 27–29. It was the sequel...

A Public View Into "A Private Life"

By Ayesha Chaterjee, Pop A.R.T. Guest Columnist | 12.05.2018

Private Life, the latest offering from Netflix, peels back the layers on the human quest for genetically related children....

Technologies

Risks Versus Ratings: How Will Michelle’s Memoir Reframe Conversations Around Infertility?

By Ayesha Chatterjee, Pop A.R.T. Guest Columnist | 11.16.2018

In her new memoir, Becoming, Michelle Obama makes a brave choice: she reveals her experience of a miscarriage and...

Assisted Reproduction

News

He Jiankui’s Genetic Misadventure, Part 2: How Different Are Chinese and Western Bioethics?

By Jing-Bao Nie, Neil Pickering, The Hasting's Center | 12.13.2018

When the world’s first research on editing the genes of human embryos by Chinese scientists  was published in an international journal in 2015, a report in the New York Timescharacterised the key issue involved as “a scientific ethical divide...

Human Genetic Modification

Scientists Say Gene-Edited Babies Claim Is 'Wake-Up Call' For World

By Rob Stein, NPR [Cites CGS' Marcy Darnovsky] | 12.13.2018

Three of the most influential scientific organizations in the world are calling for an urgent international effort to prevent scientists from creating any more gene-edited babies without proper approval and supervision.

Global standards are needed quickly to ensure gene-editing of...

Human Genetic Modification

A genetically augmented future

By Ellen Wright Clayton, Nature | 12.12.2018

The year is 2030. Gene therapy to insert the DNA sequence for dystrophin has been approved by regulators and is commonly used in children with Duchenne muscular dystrophy (DMD), a disorder linked to the X chromosome. Evidence shows that the...

Technologies

Baby Gene Edits Could Affect a Range of Traits

By David Cyranoski, Scientific American | 12.12.2018

Chinese scientist He Jiankui’s extraordinary claim two weeks ago that he had helped to make the first babies—twin girls—with edited genomes shocked the world. Many questions remain about the experiments, but among researchers’ chief concerns are the potential effects...

Technologies

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