CGS encourages responsible uses and effecitve governance of human genetic and assisted reproductive technologies

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The “Geneva Statement” Calls for Course Correction on Heritable Genome Editing

By CGS Staff | 01.31.2020
Biopolitical Times
The “Geneva Statement” is a robust and cautionary statement about the future of heritable genome editing that brings new voices and perspectives to a conversation that has so far been dominated by scientists and bioethicists.
Human Genetic Modification

Gene-Edited 'Haves' and 'Have-nots' at Davos

By Pete Shanks | 02.10.2020
Biopolitical Times
Grassroots activism and social justice advocacy are more effective when there are allies among the elite. That’s looking a little more plausible nowadays.
Human Genetic Modification

Who’s Looking at Your DNA Data? California Lawmaker Introduces Genetic Privacy Bill

By Andrew Sheeler, The Sacramento Bee | 02.12.2020

Aggregated News

A proposed California law would prohibit DNA testing companies like Ancestry and 23andMe from sharing customer DNA information with outside parties without their consent.
Genomics

A Tipping Point for DNA Tests and Surveillance Technologies?

By Pete Shanks | 01.28.2020
Biopolitical Times
There have been a remarkable spate of media stories lately involving problems with or concerns about DNA-based technology.
Genomics

Biopolitical Times

The Anglo-American Threat of a Eugenics Revival

By Pete Shanks | 02.21.2020

The resignation on February 17 of Andrew Sabisky, a recently hired junior advisor to British Prime Minister Boris Johnson sparked...

Global Governance

Gene-Edited 'Haves' and 'Have-nots' at Davos

By Pete Shanks | 02.10.2020

Heritable human gene editing is drawing attention at the very highest levels of global power. The Global Risks Report,...

Human Genetic Modification

The “Geneva Statement” Calls for Course Correction on Heritable Genome Editing

By CGS Staff | 01.31.2020

Trends in Biotechnology has published an important new statement authored by CGS’ Katie Hasson (program director on genetic justice), Marcy Darnovsky...

Human Genetic Modification

News

Should ‘Broken’ Genes Be Fixed? My Daughter Changed the Way I Think About that Question

By Ethan J. Weiss, STAT | 02.21.2020
Genetic testing showed that the author's daughter had inherited one faulty copy of the OCA2 gene from each of her parents. This gene is involved in making melanin, the substance that gives skin, hair, and eyes their color, and also...
Human Genetic Modification

N.Y.P.D. to Remove DNA Profiles of Non-Criminals From Database

By Edgar Sandoval, The New York Times | 02.20.2020
For years, New York City has been amassing an immense local database of DNA, collecting samples not just from people convicted of crimes, but from people simply arrested or questioned, including minors.
U.S. States

Stalked by the Fear That Dementia Is Stalking You

By Judith Graham, The New York Times | 02.20.2020
Testing for Alzheimer’s disease and other forms of dementia is hardly foolproof, and could even backfire.
Genomics

Designer Babies: Rogue Science or Future Option?

By Dolli Player and Alicia Matsuura, The Daily Universe [Cites CGS' Marcy Darnovsky] | 02.18.2020
It wasn’t until the discovery of CRISPR-Cas9 in 2013 that the conversation among scientists changed from “is genome editing impossible” to “should it be possible?”
Human Genetic Modification

Video
Bill McKibben and john a. powell discuss “Climate Crisis, Designer Babies, and Our Common Future.”
A Reading and Discussion with George Estreich
Controversial Gene Editing Physicist Missing