Human Genetic Modification
Human genetic modification (or “gene editing”) can be used in two very different ways. Somatic genome editing changes the genes in a patient’s cells to treat a medical condition. A few gene therapies are approaching clinical use but remain extraordinarily expensive.
By contrast, heritable genome editing would change genes in eggs, sperm, or early embryos to try to control the traits of a future child. Such alterations would affect every cell of the resulting person and all subsequent generations.
For safety, ethical, and social reasons, heritable genome editing is widely considered unacceptable. It is prohibited in 70 countries and by a binding international treaty. Nevertheless, in 2018 one scientist announced the birth of twins whose embryos he had edited. This reckless experiment intensified debate between advocates of heritable genome editing and those concerned it could exacerbate inequality and lead to a new, market-based eugenics.
Genome editing is a way of making changes to specific parts of a genome. Scientists have been able to alter DNA...
Public and policy conversations about heritable human genome editing often leave the impression that rules governing it are few and...
While embryo selection and gene editing technologies may offer great hope to couples looking to prevent hereditary disease or improve fertility. The debate over these technologies has reignited concerns that we are closer to slipping down the slope to designer babies than ever before. Are these fears warranted…or overblown?
The World Forum on Science and Democracy brings together “representatives of civil society engaged in the democratization of the production of scientific and technological knowledge.” On March 14, David King of Human Genetics Alert (UK) and Marcy Darnovsky spoke via video to its fifth annual meeting, held in Bahia, Brazil, about “The Threat of GM Babies.”
Catherine Kudlick (Longmore Institute, SFSU) offers opening remarks about the film Gattaca, followed by a panel discussion with Kudlick, Marcy Darnovsky (CGS), Sara Acevedo (California Institute of Integral Studies), Lawrence Carter-Long (Disability Rights Education and Defense Fund), Dominika Bednarska (Performer/Activist), and moderator Karen Nakamura (UC Berkeley).
The event, co-sponsored by Center for Genetics and Society, Superfest International Disability Film Festival, San Francisco Public Library, and UC Berkeley's Haas Institute for a Fair and Inclusive Society, was held at San Francisco Main Public Library on March 8, 2018.
Troy Duster (UC Berkeley) offers opening remarks about the film Gattaca, followed by a panel discussion between Duster, Rosemarie Garland-Thomson (Emory), Osagie Obasogie (UC Berkeley, CGS), and moderator Karen Nakamura (UC Berkeley).
The event, co-sponsored by CGS and the Haas Institute for a Fair and Inclusive Society at UC Berkeley, took place at the David Brower Center in Berkeley on March 6, 2018.