A ‘miracle cure’ for deafness? For people like me, here’s why that isn’t our dream
By Oliver James Campbell,
The Guardian
| 05. 13. 2024
As someone who has been hard of hearing since I was a teenager, I read with great interest about the case of Opal Sandy – the 18-month-old British toddler who has recently had her hearing “restored” in a pioneering medical trial.
Opal was born with auditory neuropathy, which is caused by the disruption of nerve impulses travelling from the inner ear to the brain, and which left her completely deaf. But after taking part in what is being heralded as a “groundbreaking” gene therapy trial at Addenbrookes hospital in Cambridge, she can now hear almost perfectly.
It’s fantastic news that this little girl can now hear. She will no longer have to go through the negative situations that people with hearing loss often face. She won’t experience being self-conscious about her hearing, as I did as an adolescent, nor the difficulties of meeting new people, such as having to ask them to repeat themselves again and again. She won’t miss out on job progression because of her hearing loss. What is often required to get on in a company...
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The Center for Genetics and Society is delighted to recommend the current edition of GMWatch Review – Number 589. UK-based GMWatch, a long-standing ally, was founded in 1998 by Jonathan Matthews as an independent organization seeking to counter the enormous corporate political power and propaganda of the GMO industry and its supporters. Matthews and Claire Robinson are its directors and managing editors.
CGS works to ensure that social justice, equity, human rights, and democratic governance are front...
