Disability Rights

Disability rights advocates have been among the earliest and most vocal critics of emerging human genetic and assisted reproductive technologies. They are acutely aware that technologies enabling the selection of “good” genes and “normal” traits can devalue the bodies and ultimately the lives of people with disabilities. Their concerns are grounded in histories of discrimination and abuse, notably the twentieth-century state-sponsored sterilization projects in dozens of U.S. states, and the Nazi campaigns to exterminate hundreds of thousands of disabled people in German medical facilities and concentration camps. Today, disability rights advocates remind all of us to ask whether scientific innovations, including prenatal tests, embryo screening, and gene editing for reproduction, are likely to create a future that respects or devalues difference and disability as a part of the human condition.

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Fifty years ago, the U.S. Supreme Court struck down state laws banning interracial marriage, but the issues involved in the case extended beyond its current popular understanding as a tribute to romance.

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Methadone Mile is a stretch of road along Massachusetts Avenue that begins in the South End and stretches north to the Charles River. On the other side of the river is Cambridge. For the past few years, I lived far...

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Lately, the online patient support group I am part of, the XLH Network — short for X-linked hypophosphatemia, the genetic...

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