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Published November 17, 2022
The prospect of using CRISPR gene editing in reproduction is often justified by claims that it will eliminate disease and disability. But these claims draw on societal narratives that devalue people with disabilities. In this roundtable conversation, Silvia Yee (Disability Rights Education and Defense Fund), Larkin Taylor-Parker (Autistic Self Advocacy Network), and Teresa Blankmeyer Burke (Gallaudet University) explore how new disability rights narratives can challenge uses of genetic and reproductive technologies based in ingrained ableism, and promote futures in which disabled people flourish. Rebecca Cokley (Ford Foundation) moderated the discussion.
Full transcript and additional information about the speakers and topic can be found on the CGS website: https://www.geneticsandsociety.org/in...
This event on November 14, 2022 was co-sponsored by Center for Genetics and Society and Disability Rights Education and Defense Fund.
Center for Genetics and Society: https://www.geneticsandsociety.org/
Disability Rights Education and Defense Fund: https://dredf.org/
Published September 21, 2022
How should we talk about equity in the context of human genome editing? While sky-high costs and lack of access to potential somatic gene therapies are important to address, we also need to ask critical questions about health equity, sovereignty, and racial justice––particularly in relation to heritable genome editing, which would alter the genes and traits of future generations. This roundtable discussion with Indigenous geneticist-bioethicist Krystal Tsosie, reproductive justice scholar and advocate Dorothy Roberts, and educator and activist Milton Reynolds addresses the legacies of eugenics, honoring Indigenous sovereignty, decolonizing DNA, and why conversations about heritable genome editing urgently need voices and perspectives grounded in social justice and human rights. This discussion was hosted by Center for Genetics and Society and moderated by CGS associate director Katie Hasson.
Access a full transcript and learn more about the event and speakers at https://www.geneticsandsociety.org/in....
Published March 31, 2023
The third panel in CGS' Missing Voices Initiative webinar series, this roundtable conversation explored the perilous prospect of reproductive uses of human genome editing from the perspective of feminist and reproductive justice scholars and advocates. Their intersectional analyses illuminated concerns related to eugenics and the rapidly expanding global fertility industry. Speakers were Kavita Ramdas, Alana Cattapan, and Amrita Pande, and the panel was moderated by Susan Berke Fogel.
Find more information about the panel's speakers here: https://www.geneticsandsociety.org/in...
Learn more about CGS' Missing Voices Initiative here: https://www.geneticsandsociety.org/in...
Published March 2, 2023
This two-part online CGS event centers social justice and human rights, presenting voices and perspectives from feminist, disability rights, reproductive rights and justice, racial justice, environmental, and human rights movements and scholars, who question whether heritable genome editing has any place in a fair and inclusive future. Day 2 of the symposium includes two panels: "Missing voices speak out," featuring Larkin Taylor Parker, Abril Saldaña, Dana Perls, and Nourbese Flint, and moderated by Emily Galpern; and "Genetic justice beyond the summit," featuring Isabelle Bartram, Maria Ní Flatharta, Milton Reynolds, and Katie Hasson.
This two-part online CGS event centers social justice and human rights, presenting voices and perspectives from feminist, disability rights, reproductive rights and justice, racial justice, environmental, and human rights movements and scholars, who question whether heritable genome editing has any place in a fair and inclusive future. Part one took place on February 27, 2023 and features CGS Executive Director Marcy Darnovsky discussing history and context of the Summit process, followed by Dorothy Roberts, Rosemarie Garland-Thomson, George Annas and Silvia Yee (moderator) in conversation to discuss the social justice case against heritable genome editing.
