Should Research Subjects Be Given Their Genetic Test Results?
        
            By Margaret Lutze, 
                Guardian Liberty Voice
             | 06. 12. 2014
        
                    
                                    
                    
                                                                                                                                    
                                                                            
                              
    
  
  
    
  
          
  
      
    
             
  Untitled Document 
  
 
    Should research subjects be given their   genetic test results? A paper recently published in The American   Journal of Human Genetics considered the ethical issues related to   returning genetic testing results to people who have participated in   research experiments.
 
    There is a growing number of research projects that use   next-generation DNA sequencing to determine the sequence of the DNA   nucleotides (ATCGs) in a person’s entire genome. Next-generation   sequencing is a new technique that allows DNA sequencing information for   an individual to be gathered very quickly. Previously, only certain   chosen areas of a person’s genome would be sequenced for a research   study due to time and efficiency constraints. Now, however, with the   efficiency of next-generation sequencing, it is cost- and time-effective   to sequence everything, meaning all the DNA of that person.
 
    The ethical dilemma that results from this is the fact that the   research scientist now has information about all of the research   subject’s genes, and there may be something in their genetic make-up   that would be medically significant for that person. The question is,   since the research scientist may now have...
 
 
 
  
 
    
    
  
   
                        
                                                                                
                 
                                                    
                            
                                  
    
  
  
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