Gene therapy at CHOP allowed a deaf boy to hear. But some deaf people object to the treatment.
By Tom Avril,
The Philadelphia Inquirer
| 02. 08. 2024
An 11-year-old deaf boy is now able to hear in one ear after undergoing a gene therapy treatment at Children’s Hospital of Philadelphia, one of the first such cases in the world. A second boy, aged 3, is scheduled to receive the treatment at CHOP on Friday.
Yet the news has drawn dismay from some who can best appreciate what’s at stake: other deaf people.
For many deaf people, deafness is not something that needs to be fixed. Unlike other medicalconditions that have been treated with gene therapy, deafness is not a disease and it doesn’t deprive someone of a long, rich life. Similar concerns were raised years ago with the invention of cochlear implants, electronic devices that merely approximate the sense of hearing.
But physicians say gene therapy is likely to yield even better results, providing normal or near-normal hearing ability to thousands of people born with rare types of deafness. More than a decade after the first successful gene therapy was tested at CHOP, the technology has come of age, enabling doctors to treat conditions from...
Related Articles
What We Inherit by Sam Trejo and Daphne O. Martschenko; and Original Sin by Kathryn Paige Harden have a great deal in common, with substantial differences in style and emphasis. Both books attempt, in different ways, to show the reader just where current research into human genomics stands, where that might be going, and why the authors are interested. In short, the influence of genomic research on our societies is already large and seems likely to change them in ways...
By Dan Falk, Nautilus | 08.20.2026
The pseudoscience of eugenics, founded on the mistaken notion that nature envisions some “right” combination of genes, and that selective breeding can improve the human race, is making a comeback. While the heyday of eugenics was a century ago, the...
By Emily Packard Dawson and Lainie Friedman Ross, MedPage Today | 08.18.2026
Few things evoke a greater sense of desperation than a parent seeking an experimental treatment for their child. That desperation can make even extraordinary risks seem worth taking. This dynamic has come into stark relief after Mei, a 6-year-old girl...
By Ryan Cross, Endpoints News | 08.20.2026
China’s cheap, fast and quiet system for testing cutting-edge medicines is facing scrutiny after the deaths of three people in investigator-initiated trials.
The studies, also known as IITs, allow experimental cell and gene therapies to be tested without oversight from...