News

Cathy Tie slips on a white lab coat bearing her name and the logo of her startup: Origin Genomics. "Welcome!" she says as she leads an NPR reporter, photographer and videographer on an exclusive tour of Origin's labs located...

This is the 17th installment in the Legacies of Eugenics series, which features essays by leading thinkers devoted to exploring the history of eugenics and the ways it shapes our present. The series is organized by Osagie K. Obasogie in...

THE INSTAGRAM POST, precision-guided by sex and age, had zeroed in on its target. Yuchen Tu is a conser­vatory-trained viola...

This is the 16th installment in the Legacies of Eugenics series, which features essays by leading thinkers devoted to exploring...

By Kevin Rawlinson, The Independent | 09.02.2009
A 41-year-old woman with a history of miscarriages and 13 failed cycles of IVF treatment has given birth to a...
By Bae Ji-sook, Korea Times | 09.01.2009
The world’s first cloned wolf, “Snuwolf,” was found dead last Saturday at Seoul Grand Park, a Seoul National University (SNU)...
By Oregon Public Broadcasting, Think Out Loud | 09.01.2009
Roughly one out of every 4,000 children in the United States develops a mitochondrial disease before the age of 10...
Press Statement

Public interest, social justice, and women’s health advocates filed a "friend of the court" brief [PDF] in support of a groundbreaking lawsuit by the American Civil Liberties Union and Public Patent Foundation challenging the constitutionality of human gene patents.

"Patents on genes and gene variations increase health disparities by denying women information about their own bodies," said Susan Berke Fogel, JD, of the Pro-Choice Alliance for Responsible Research. "Furthermore, genes are part of the common heritage of humanity – they carry information about our biological histories and link us to each other and to future generations. No one should own that which belongs to all of us."

Last week, the Center for Genetics and Society, the Pro-Choice Alliance for Responsible Research, Asian Communities for Reproductive Justice, Generations Ahead, and the National Women’s Health Network filed an amicus brief in federal court in the Southern District of New York.

"A century of patent law prohibits patents on products and laws of nature," added Marcy Darnovsky, PhD, of the Center for Genetics and Society. "Genes are like new minerals found in the earth, plants growing in the wild, or the laws of gravity and relativity: They are phenomena of nature and cannot be patented."

Several major organizations, including the American Medical Association, the March of Dimes, and the American Society for Human Genetics, have also filed supporting briefs.

The American Civil Liberties Union and the Public Patent Foundation filed the lawsuit in May on behalf of Breast Cancer Action, Our Bodies Ourselves, individual women and breast cancer patients, genetic counselors, four scientific organizations representing more than 150,000 researchers and laboratory professionals, and individual researchers. The lawsuit challenges the constitutionality of gene patents, in general, and those granted to Myriad Genetics, specifically. These patents give the company exclusive control of two genes which are associated with increased risk of breast and ovarian cancer.

For more information:

The Center for Genetics and Society is a non-profit public affairs and policy advocacy organization working to encourage responsible uses and effective societal governance of human genetic and reproductive biotechnologies.

The Pro-Choice Alliance for Responsible Research is a coalition of reproductive rights and justice advocates, bioethicists, academics, and community leaders working together to promote accountability, safety and social justice in bio-medical research from a women’s rights perspective. 


Contact:
Susan Berke Fogel
818-621-7358
sbfogel[AT]pacbell[DOT]net

Marcy Darnovsky
510-625-0819, ext 305
darnovsky[AT]geneticsandsociety[DOT]org


 

By Kim Tong-hyung, Korea Times | 08.31.2009
South Korean scientists Monday reported a surviving clone of an endangered cattle species native to Jeju Island.

Researchers here have...
By Tony Dutra, The Bureau of National Affairs | 08.28.2009
The American Civil Liberties Union Foundation and the Public Patent Foundation filed a motion for summary judgment Aug. 26 challenging...
By Sarah Barr and Jeannie Baumann, The Bureau of National Affairs | 08.27.2009

The National Institutes of Health April 17 released draft guidelines that would limit government-funded research using human embryonic stem cells...

By Rob Stein, Washington Post | 08.26.2009
Scientists have produced monkeys with genetic material from two mothers, an advance that could help women with some inherited diseases...