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an image of DNA in black and white

During his 2015 State of the Union address, then-President Barack Obama announced what he promised would be an ambitious public health project. “Tonight, I’m launching a new Precision Medicine Initiative to bring us closer to curing diseases like cancer and diabetes, and to give all of us access to the personalized information we need to keep ourselves and our families healthier,” Obama said with confidence. “We can do this.” He was met with applause. 

That announcement introduced the National Institutes of Health’s “All of US” initiative, designed to organize and provide to researchers the health data of up to a million Americans who opted in to donate their blood, general electronic health records, and more. People’s names are replaced with a code before researchers access their data, and NIH asserts that only a few people have access to the list of codes that correspond with names. As of late June, data from nearly 750,000 participants is available to researchers who are studying such diseases like Alzheimer’s disease and diabetes, as well as overall health patterns like sleep.

Since then...