News

During his 2015 State of the Union address, then-President Barack Obama announced what he promised would be an ambitious public health project. “Tonight, I’m launching a new Precision Medicine Initiative to bring us closer to curing diseases like cancer and diabetes...

This is the 15th installment in the Legacies of Eugenics series, which features essays by leading thinkers devoted to exploring the history of eugenics and the ways it shapes our present. You can read the first part here. The series...

Justin Schleede reaches onto a black lab bench to pick up a tray of small plastic tubes.

"These are saliva...

"If proven to be safe, we believe preventive gene editing could be one of the most important health technologies of...

By Susan Berke Fogel and Jesse Reynolds | 05.24.2006

C. Scott Tocher, Interim Counsel
California Institute for Regenerative Medicine
210 Kings Street
San Francisco, CA 94107

RE: Re-comment on...

Press Statement

Two public interest groups this week submitted an open letter to the leadership of the National Academies, calling for greater balance in viewpoints and expertise on a new committee that will monitor human embryonic stem cell research and recommend voluntary guidelines to researchers.

The letter from CGS and the CSPI stated, "The proposed members of the committee bring a wealth of experience in the biological sciences and health law. However… we believe that a number of critical perspectives and backgrounds are inadequately represented."

The letter expressed three key concerns:

  • a lack of public health or health law experts, bioethicists, or policy experts who have expressed the need for caution and effective public oversight of stem cell research, including formal structures of federal regulation
  • a lack of experts with a professional background in the provision of women's health
  • a lack of experts who bring demonstrated research experience and concern for access to health care for ethnic minorities and the economically vulnerable

The National Academies Human Embryonic Stem Cell Research Advisory Committee was established this month to regularly update the recommended nonbinding guidelines issued by a similar committee of the National Academies last year. The National Academies are a set of independent nonprofit organizations that advise the federal government on key matters of science, technology, and medicine.

The letter is available online at http://www.genetics-and-society.org/resources/cgs/20060522_naletter_cgscspi.html

The Center for Genetics and Society is a nonprofit information and public affairs organization working to encourage responsible uses and effective societal governance of the new human genetic and reproductive technologies. The Integrity in Science Project at the Center for Science in the Public Interest is a consumer advocacy organization that encourages policy-makers at all levels of government to seek balance on expert advisory committees.


Contact:
Parita Shah
510-625-0819 x312

Marcy Darnovsky
510-625-0819 x305


 

By William Saletan, Slate | 05.19.2006
We've just taken another step down the slippery slope toward eugenics.

The step involves "preimplantation genetic diagnosis," in which clinics...
By CHOE SANG-HUN, New York Times | 05.12.2006
SEOUL, May 12 _ Hwang Woo Suk, the disgraced cloning expert, was indicted on fraud and embezzlement charges today, months...
By Tom Abate, San Francisco Chronicle | 05.12.2006
Is technology poised to develop machines that can outsmart their human creators?

And what will happen to mere mortals if...
By Pete Shanks, Genetic Crossroads | 05.12.2006
Seoul National University

The downfall of South Korean cloning researcher Hwang Woo-Suk, formerly his country's "supreme scientist," continues to play...

By Daniel Callahan, Bioethics Forum | 05.11.2006
I am sometimes baffled by my fellow liberals in their social priorities. Why, for instance, does stem cell research receive...
By Patricia Reaney, Reuters UK | 05.10.2006
LONDON (Reuters) - The fertility watchdog decided on Wednesday to extend genetic screening of human embryos used in IVF treatments...