Jeff Johnson is 40 years old, and for all 40 of those years, he has been living with hemophilia. The genetic disorder prevents blood from properly clotting, which, if untreated, can cause uncontrollable bleeding. Yet, Johnson says, he does not...
Talking Biopolitics with George Estreich interviewed by Emily Beitiks
June 3, 2013
Please join George Estreich and the Center for Genetics and Society for Talking Biopolitics 2013. In this live web-based interview and conversation, George will talk with the Longmore Institute on Disability's Emily Beitiks – and with you – about his experiences in writing and promoting The Shape of the Eye: A Memoir, and about his thoughts on the new biopolitics.
Please let us know by May 27 if you would like captioning, and we will gladly arrange it.
About the Book
How are the new non-invasive fetal gene tests affecting women’s experiences of pregnancy and childbearing? How might they change our personal and social feelings about disabilities such as Down syndrome?
These questions hover in the background of George Estreich’s award-winning memoir about his family and life with daughter Laura, who has Down syndrome. He ponders them briefly, with insight and literary elegance, in the Afterword of the new paperback edition of The Shape of the Eye, and at greater length in his series of essays for the Center for Genetics and Society blog Biopolitical Times (1, 2, and 3).
Beneath them lie other questions that touch on an array of genetic and reproductive technologies – not the least of which, as Timothy Shriver of the Special Olympics puts it in his comments about The Shape of the Eye, is “what it means to be 'human’ and what it means to be ‘different.’”
About the Author
George Estreich is a writer and at-home dad living in western Oregon with his family. He has published two books: Textbook Illustrations of the Human Body, an award-winning collection of poetry, and The Shape of the Eye, a book about raising his daughter Laura, who has Down syndrome. George is also a regular guest contributor to Biopolitical Times, the blog of the Center for Genetics and Society, where he has written a series on marketing fetal gene tests (1, 2, and 3), as well as "Of Monsters and Men," about The Amazing Spider-Man, and "On Vampires and Chromosomes," about the Twilight books. His other short prose includes “The Shadow Family,” an essay about living in Australia published in Superstition Review, and “Art By and For the Lost,” about graffiti in Melbourne, published in the online journal Eureka Street. His B.A. is from the University of Virginia, his M.F.A. from Cornell University.