Panel urges caution in tying sexual orientation, education levels to genes
By Jocelyn Kaiser,
| 04. 25. 2023
Last year, a study linking the DNA and education data for 3 million people of European ancestry found the resulting genetic scores predicted 15% of a person’s highest level of schooling—an influence nearly as strong as parents’ combined education level.
The latest in a series of provocative findings, the study raised a concern a new report out last week from an expert panel addresses: Could studies probing genetic links to social outcomes such as income and education and to traits such as intelligence uncover differences in people of different ancestries that could be misused by racists?
The panel concluded that given scientific uncertainties, for now, scientists and funders should avoid such comparative studies. In the United States, such concerns may be distant: Science has learned that the two major federally funded biobanks generally don’t let their data be used for nonmedical research. But experts convened by the Hastings Center, an ethics think tank, split on whether such studies should ever be done, with some arguing they will never be ethically justified.
“There are people in the group who probably would... see more
By CGS Staff
On May 4, the Center for Genetics and Society contributed invited remarks about heritable gene editing at a comment session hosted by the National Council on Disability (NCD), the US federal agency that advises government and the private sector on disability policy. Some 17 speakers, including representatives of disability and patient advocacy organizations, scholars, medical researchers, and genetic counselors, weighed in for three minutes each on the topic “Germline editing, fetal medicine, and their impact on people with disabilities.”
By Rob Stein, NPR | 05.02.2023
When Chase Finazzo was just a few years old, his parents noticed Chase was pretty clumsy. But they didn't think it was anything serious.
"He would fall a lot. Not like a lot a lot. But he had trouble climbing...
By Sarojini Nadimpally, The BMJ | 05.03.2023
Challenges exist around heritable gene editing, its potential medical applications, ethical implications, and the need for regulatory mechanisms in the field. In March this year I spoke at the Third International Summit on Human Genome Editing, held in London, about...
By David Jensen, The California Stem Cell Report | 04.24.2023
What good is a “miraculous” cure or a revolutionary therapy -- which is the goal of a $12 billion state of California enterprise -- if it is not accessible to patients?
That’s a question implicitly posed by a former member...