Insurance Companies Shouldn’t Seek Genetic Test Results, Says Privacy Watchdog
By Steve Rennie,
The Canadian Press
| 07. 10. 2014
OTTAWA—Canada’s privacy watchdog is urging insurance companies and others to stop asking for access to the results of existing genetic tests at this time.
Privacy Commissioner Daniel Therrien says it is becoming more of a challenge to protect people’s genetic privacy with recent advances in science and technology.
“We are calling on the industry to refrain from asking for existing test results to assess insurance risk until the industry can clearly show that these tests are necessary and effective in assessing risk,” Therrien said in a statement Thursday.
“This would
allow people to undergo genetic testing for various purposes without fear that the results may have a negative impact if they apply for insurance.”
There are now hundreds of genetic tests available to help spot genes known to increase a person’s risk of developing certain medical conditions.
But some people may decline tests for fear a positive result may mean they could face discrimination from insurance companies or their employers.
“It is not reasonable and not necessary for the insurance industry to ask for genetic information when they’re making their...
Related Articles
By Annika Inampudi, Science | 08.01.2025
In June, Sara* received a message asking whether she wanted to continue to participate in a massive, multicenter research project led by scientists at Aarhus University in Denmark. The iPsych study, the message said, had sequenced her genetic data from...
The Center for Genetics and Society is delighted to recommend the current edition of GMWatch Review – Number 589. UK-based GMWatch, a long-standing ally, was founded in 1998 by Jonathan Matthews as an independent organization seeking to counter the enormous corporate political power and propaganda of the GMO industry and its supporters. Matthews and Claire Robinson are its directors and managing editors.
CGS works to ensure that social justice, equity, human rights, and democratic governance are front...
By Katherine Drabiak, Journal of Medical Ethics Forum | 08.07.2025
Adapted from Mitochondrial DNA at
National Human Genome Research Institute
Recently, media outlets around the world have been reporting on children born from pronuclear genome transfer (sometimes called “3-parent IVF,” “mitochondrial donation” or “mitochondrial replacement therapy”) at Newcastle Fertility Center...
By Annika Inampudi, Science | 07.10.2025
Before a baby in the United States reaches a few days old, doctors will run biochemical tests on a few drops of their blood to catch certain genetic diseases that need immediate care to prevent brain damage or other serious...