I’m disabled and need a ventilator to live. Am I expendable during this pandemic?
By Alice Wong,
Vox
| 04. 04. 2020
It is a strange time to be alive as an Asian American disabled person who uses a ventilator. The coronavirus pandemic in the United States has disrupted and destabilized individual lives and institutions. For many disabled, sick, and immunocompromised people like myself, we have always lived with uncertainty and are skilled in adapting to hostile circumstances in a world that was never designed for us in the first place. Want to avoid touching door handles by hitting the automatic door opener with your elbow? You can thank the Americans with Disabilities Act and the disabled people who made it happen.
Technology, accessibility, and a hardcore will to live shaped me into a cyborg oracle ready to spill some hot truths. I am tethered to and embedded with a number of things that keep me alive: a power wheelchair, a non-invasive ventilator that is connected to my chair’s battery, a mask that goes over my nose attached to a tube, metal rods fused to my spine. How I sound, move, and look elicits pity and discomfort by many in public. This...
Related Articles
By Jenni Fink, Newsweek | 08.19.2026
“Donald Trump” by Gage Skidmore is licensed under CC BY-SA 2.0
President Donald Trump's latest effort to limit birthright citizenship could have consequences for the international surrogacy industry, potentially affecting thousands of intended parents from overseas who travel...
By Ryan Cross, Endpoints News | 08.20.2026
China’s cheap, fast and quiet system for testing cutting-edge medicines is facing scrutiny after the deaths of three people in investigator-initiated trials.
The studies, also known as IITs, allow experimental cell and gene therapies to be tested without oversight from...
By Jessica Hamzelou, MIT Technology Review | 07.30.2026
As of this week in Montana, any biotech company with an experimental drug has a clear path to selling it to consumers. Companies whose drugs have been through preliminary testing—sometimes in as few as 10 healthy people—can pay $12,500 to...
By Dhruv Mehrotra , Wired | 08.03.2026
On March 13, 2025, Hugo Moreno-Mendez arrived at the McLennan County Probation Department in Waco, Texas, expecting a routine probation check-in. Instead, Immigration and Customs Enforcement officers were waiting to arrest him.
According to a criminal complaint reviewed by WIRED...