The big idea: how much do we really want to know about our genes?
By Daniel M Davis,
The Guardian
| 12. 06. 2021
Genetic data will soon be accessible like never before. The implications for our health are huge
While at the till in a clothes shop, Ruby received a call. She recognised the woman’s voice as the genetic counsellor she had recently seen, and asked if she could try again in five minutes. Ruby paid for her clothes, went to her car, and waited alone. Something about the counsellor’s voice gave away what was coming.
The woman called back and said Ruby’s genetic test results had come in. She did indeed carry the mutation they had been looking for. Ruby had inherited a faulty gene from her father, the one that had caused his death aged 36 from a connective tissue disorder that affected his heart. It didn’t seem the right situation in which to receive such news but, then again, how else could it happen? The phone call lasted just a few minutes. The counsellor asked if Ruby had any questions, but she couldn’t think of anything. She rang off, called her husband and cried. The main thing she was upset about was the thought of her children being at risk.
Over the next few weeks, she...
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Following a long-standing CGS tradition, we present a selection of our favorite Biopolitical Times posts of the past year.
In 2025, we published up to four posts every month, written by 12 authors (staff, consultants and allies), some in collaboration and one simply credited to CGS.
These titles are presented in chronological order, except for three In Memoriam notices, which follow. Many more posts that are worth your time can be found in the archive. Scroll down and “VIEW...