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Cathy Tie slips on a white lab coat bearing her name and the logo of her startup: Origin Genomics. "Welcome!" she says as she leads an NPR reporter, photographer and videographer on an exclusive tour of Origin's labs located...

This is the 17th installment in the Legacies of Eugenics series, which features essays by leading thinkers devoted to exploring the history of eugenics and the ways it shapes our present. The series is organized by Osagie K. Obasogie in...

THE INSTAGRAM POST, precision-guided by sex and age, had zeroed in on its target. Yuchen Tu is a conser­vatory-trained viola...

This is the 16th installment in the Legacies of Eugenics series, which features essays by leading thinkers devoted to exploring...

By Stephanie Nolen, Toronto Globe and Mail | 02.13.2009

Anoop Gupta slumps in his swivel chair and surveys what the day has brought his Delhi fertility clinic: a rich...

Press Statement
Sperm is prepared for IVF

IVF octuplets and abuses of embryo screening highlight need for oversight

A new ad on a fertility clinic’s website offers a procedure to select the complexion - as well as the sex, eye color and hair color - of future children. This development, along with the birth of octuplets to a southern California woman, brings new attention to the urgent need for effective regulation and oversight of the multi-billion dollar assisted reproduction industry in the US, says the Center for Genetics and Society, a public interest organization.

"Assisted reproduction in America has been a Wild West for too long," said Marcy Darnovsky, PhD, the Center's Associate Executive Director. "Responsible oversight of extreme reproductive technologies such as embryo selection based on skin color is long overdue."

The website of the Fertility Institutes, a Los Angeles-based chain of fertility clinics, announces the "pending availability" of genetic tests for these traits. The testing would be part of the embryo screening procedure known as pre-implantation genetic diagnosis or PGD.

Dozens of assisted reproduction companies in the United States offer PGD for non-medical sex selection. This appears to be the first offer of the procedure for hair, eye, or skin color.

"Screening embryos for skin color isn't about reproductive choice," said CGS Senior Fellow and University of California's Hasting School of Law Associate Professor Osagie Obasogie. "It's about leveraging social prejudices to try to give your kid a leg up. Researchers say they haven't yet identified key genes that control skin color in people of non-Caucasian descent, but this is the tip of the iceberg in terms of how reproductive and genetic technologies could fundamentally reshape race relations."

The United States is notorious for its inadequate regulation and oversight of assisted reproduction, which has become a $3 billion dollar business in this country alone. A large majority of industrialized countries – including Canada, the UK, most of Europe, Japan, Israel, China, and Australia – prohibits non-medical sex selection. Many have established comprehensive oversight of assisted reproduction.

"The Fertility Institutes and its director have long pushed the limits of what is acceptable," continued Darnovsky. "They offer sex selection to any paying customer, even offering travel packages so that people can come to the US to dodge laws in their home nations."

The fertility industry’s national professional organization, the American Society for Reproductive Medicine, discourages the use of PGD for non-medical sex selection. Its guidelines also recommend limiting the number of embryos transferred into a woman’s body. But many assisted reproduction businesses openly violate these guidelines.

Last week, it was revealed that the octuplets born in southern California were conceived by IVF. Most cited fertility experts condemned the implantation of so many embryos, but Steinberg was among the few to defend it.

Osagie Obasogie is the author of the recent CGS report Playing the Gene Card? A Report on Race and Human Biotechnology.

The Center for Genetics and Society (www.geneticsandsociety.org) is a non-profit public affairs and policy advocacy organization working to encourage responsible uses and effective societal governance of human genetic and reproductive biotechnologies.


Contact:
Marcy Darnovsky
1-510-625-0819 x305
mdarnovsky[AT]geneticsandsociety[DOT]org


 

By Jesse Reynolds, AlterNet | 02.12.2009

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By Stephanie Saul, New York Times | 02.12.2009
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By Jeremy Laurance, The Independent | 02.12.2009
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By Gautam Naik, Wall Street Journal | 02.12.2009
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By AP, Associated Press [cites CGS] | 02.11.2009

The Center for Genetics and Society has joined the call for disciplinary action against the clinic that treated octuplet mother...

Press Statement

Flagrant violation of guidelines warrants revocation of membership and demonstrates need for regulation

The assisted reproduction industry’s professional organizations should revoke the membership of the programs responsible for the recent birth of octuplets, according to the Center for Genetics and Society, a public interest group.

“The fertility industry has guidelines limiting the number of embryos to be transferred, and Ms. Suleman’s doctor violated them in a reckless way,” said Marcy Darnovsky, PhD, the Center's associate executive director. “If the American Society for Reproductive Medicine and the Society for Assisted Reproductive Technology don’t take action in this case, their guidelines don’t seem to mean much."

Much of the recent attention to the octuplets has focused on their mother, Nadya Suleman. The Center believes that the policy focus should be on the assisted reproduction practitioners. In a television interview yesterday, Suleman revealed that Michael Kamrava of the West Coast IVF Clinic in Beverly Hills was the attending fertility doctor.

“The ASRM and its sister organization SART say, 'Trust us, we’re doctors,'” Darnovsky continued. “But while most fertility practices are responsible, some routinely and openly violate ASRM and SART guidelines in a number of areas. In this respect, the baby business is like Wall Street: relying on self-regulation is an invitation to trouble.”

Unlike most industrialized countries, the United States has little regulatory oversight of the assisted reproduction industry. The ASRM provides voluntary guidelines of conduct for its members. For example, they say that only one embryo should be implanted in women under 35 who have had prior successful pregnancies.

“Effective regulation and oversight of the $3 billion baby business is long overdue,” concluded Darnovsky. “In the meantime, let's see if ASRM and SART will do anything meaningful to control their members.”

The Center for Genetics and Society is a non-profit public affairs and policy advocacy organization working to encourage responsible uses and effective societal governance of human genetic and reproductive biotechnologies.


Contact:
Marcy Darnovsky
1-510-625-0819 x305
mdarnovsky[AT]geneticsandsociety[DOT]org