Wider Debate Swirls Over Ruling That Curtailed Berkeley's DNA Program
By Josh Keller,
The Chronicle of Higher Education
| 08. 19. 2010
After months of debate, a ruling by the California Department of Public Health last week put an end to the most controversial part of a student DNA-testing project at the University of California at Berkeley, but now another debate has opened over how academic research will be affected.
Some researchers fear that the health department's position on the Berkeley project could have broader implications for academic research in California, limiting the conditions under which subjects of research studies could learn about potential health issues. Others say those concerns are unfounded.
Berkeley's plan to teach incoming freshmen about personal genetics by allowing them to obtain personal results for three genetic markers sparked a political firestorm. The program put Berkeley in the middle of a heated national debate over the ethics of personal DNA testing, driven by rapid scientific advances and the explosive growth of the personal-testing industry.
State lawmakers unsuccessfully tried to pass a bill to discourage the project, and advocacy groups and some researchers called the program unwise and potentially unethical. Last week, state health regulators said that as long...
Related Articles
By Margaux MacColl, The San Francisco Standard | 09.17.2025
Designer babies are coming soon to an IVF clinic near you.
Nucleus Genomics, founded by Kian Sadeghi in 2020, when he was just 20, got its start analyzing genomes to weigh a person’s risk of everything from cancer to ADHD...
By Johana Bhuiyan, The Guardian | 09.23.2025
In March 2021, a 25-year-old US citizen was traveling through Chicago’s Midway airport when they were stopped by US border patrol agents. Though charged with no crime, the 25-year-old was subjected to a cheek swab to collect their DNA, which...
By Annika Inampudi, Science | 08.01.2025
In June, Sara* received a message asking whether she wanted to continue to participate in a massive, multicenter research project led by scientists at Aarhus University in Denmark. The iPsych study, the message said, had sequenced her genetic data from...
The Center for Genetics and Society is delighted to recommend the current edition of GMWatch Review – Number 589. UK-based GMWatch, a long-standing ally, was founded in 1998 by Jonathan Matthews as an independent organization seeking to counter the enormous corporate political power and propaganda of the GMO industry and its supporters. Matthews and Claire Robinson are its directors and managing editors.
CGS works to ensure that social justice, equity, human rights, and democratic governance are front...