The Untold Story of the ‘Circle of Trust’ Behind the World’s First Gene-edited Babies
By Jon Cohen,
Science
| 08. 01. 2019
A public relations specialist He Jiankui hired has cataloged five dozen people who were not part of the controversial study but knew or suspected what He was doing before it became public.
On 10 June 2017, a sunny and hot Saturday in Shenzhen, China, two couples came to the Southern University of Science and Technology (SUSTech) to discuss whether they would participate in a medical experiment that no researcher had ever dared to conduct. The Chinese couples, who were having fertility problems, gathered around a conference table to meet with He Jiankui, a SUSTech biophysicist. Then 33, He (pronounced "HEH") had a growing reputation in China as a scientist-entrepreneur but was little known outside the country. "We want to tell you some serious things that might be scary," said He, who was trim from years of playing soccer and wore a gray collared shirt, his cuffs casually unbuttoned.
He simply meant the standard in vitro fertilization (IVF) procedures. But as the discussion progressed, He and his postdoc walked the couples through informed consent forms that described what many ethicists and scientists view as a far more frightening proposition. Seventeen months later, the experiment triggered an international controversy, and the worldwide scientific community rejected him. The scandal cost him his university position and...
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The Center for Genetics and Society is delighted to recommend the current edition of GMWatch Review – Number 589. UK-based GMWatch, a long-standing ally, was founded in 1998 by Jonathan Matthews as an independent organization seeking to counter the enormous corporate political power and propaganda of the GMO industry and its supporters. Matthews and Claire Robinson are its directors and managing editors.
CGS works to ensure that social justice, equity, human rights, and democratic governance are front...