Joe and The Gene: A Mother's Perspective
By Lia Tremblay,
NPR
| 04. 09. 2020
Joe has my nose, his father’s eyes, and facial expressions that mirror those of his grandfathers. But the unexpected “misspelling” coiled up in his DNA has also given us a child we could never have imagined—and would never want to replace.
Seeing Thomas Hunt Morgan’s experiments with fruit flies in episode one of The Gene: An Intimate History took me right back to ninth grade biology. My entire class of 14-year-olds paired up to carefully sedate swarms of fruit flies and group them according to their physical characteristics. Then we matched them up for mating and inspected their offspring to see which eye colors, stripe patterns and wing shapes had passed down to the new generation.
For many years, that was the extent of my interest in genetics.
Then came Joe. The only child of my husband and me, Joe is 11 years old, laughs a lot and loves to dance. Like a lot of 11-year-olds, he spends too much time on his iPad, ignores our directions and dawdles over dinner.
But Joe is also very different from most of his peers. He speaks only a few words, learns new things at a leisurely pace, needs help with tasks like climbing steps and opening doors, and is about the size of a child half his age.
Like Susannah, the...
Related Articles
By Dan Falk, Nautilus | 08.20.2026
The pseudoscience of eugenics, founded on the mistaken notion that nature envisions some “right” combination of genes, and that selective breeding can improve the human race, is making a comeback. While the heyday of eugenics was a century ago, the...
By Claire Robinson and Jonathan Matthews, Guest Contributors
| 08.25.2026
This is an excerpt of an article originally published on August 1, 2026 at GMWatch.
A six-year-old girl has died in a gene editing gene therapy trial in China that went wrong, the journal Science reports. Seven days after the girl's medical team infused trillions of viruses carrying the recipe for the gene editing tool – in this case a base editor – into her spinal fluid, she died of a severe immune reaction linked to the therapy.
Just...
By Lillian Kollross , Ms. Magazine | 07.25.2026
In 1937, the U.S. began one of the largest sterilization campaigns in modern history in its colony of Puerto Rico. By the 1970s, one-third of all Puerto Rican women of childbearing age had been sterilized, most without being properly informed...
By Brendan Borrell, Science | 07.23.2026
The young girl tugged on her mother’s hand as they pressed through the doors of the hospital in Shanghai. She was 6 years old, bouncing along in a pink jacket and blue pants decorated with cartoon bears. Behind them, her...