The Wrong Way to Make Policy About Heritable Genome Modification
By Marcy Darnovsky,
The Hill
| 05. 29. 2019
Last fall, when a Chinese scientist announced that he had created genetically modified twin babies, the world was stunned and outraged. In the U.S., we were able to draw some modicum of reassurance from a policy that has served as a barrier to such reckless human experimentation: A rider to the federal spending bill bars the Food and Drug Administration (FDA) from considering clinical trials “in which a human embryo is intentionally created or modified to include a heritable genetic modification.”
Yet now that provision is being eyed for removal.
When it was adopted in 2015, the provision brought the U.S. into closer alignment with most other countries across the globe with developed biotech sectors. During the late 1990s and early 2000s, dozens of national legislatures debated whether new genetic technologies should be used to alter the biology and traits of future human beings.
Every one of them decided that the benefits would be dubious at best and the societal dangers unacceptably dire, and passed laws against it. In Europe, 29 countries also signed and ratified the...
Related Articles
The Center for Genetics and Society is delighted to recommend the current edition of GMWatch Review – Number 589. UK-based GMWatch, a long-standing ally, was founded in 1998 by Jonathan Matthews as an independent organization seeking to counter the enormous corporate political power and propaganda of the GMO industry and its supporters. Matthews and Claire Robinson are its directors and managing editors.
CGS works to ensure that social justice, equity, human rights, and democratic governance are front...
By Ryan Cross, Endpoints News | 08.19.2025
Human eggs are incredibly rare cells. The ovary typically produces only 400 mature eggs across a woman’s life. But biologists in George Church’s lab at Harvard University — a group that’s never content with nature’s limits — just got a...
By Katherine Drabiak, Journal of Medical Ethics Forum | 08.07.2025
Adapted from Mitochondrial DNA at
National Human Genome Research Institute
Recently, media outlets around the world have been reporting on children born from pronuclear genome transfer (sometimes called “3-parent IVF,” “mitochondrial donation” or “mitochondrial replacement therapy”) at Newcastle Fertility Center...
By Nicky Hudson, The Conversation | 08.12.2025
