Opinion: ADA and the new eugenics
By Andrew J. Imparato and Anne C. Sommers,
Washington Examiner
| 08. 10. 2005
With the mapping of the human genome, potential for improving the quality of life for people with painful and degenerative conditions has brought new hope in many circles. To be sure, the prospect of cures and disease prevention has widespread appeal. Yet are we ready to use genetic engineering to prevent the birth of any baby with Down syndrome, dwarfism or genetic forms of deafness or mental health conditions? What about genetic predispositions for cancer or Alzheimer's disease? Who decides?
Last month America marked the 15th anniversary of the signing of the Americans with Disabilities Act, a landmark civil rights law recognizing that disability is a natural part of human diversity that in no way should limit a person's right to make choices, pursue meaningful careers and participate fully in all aspects of society.
The ADA stands in marked contrast to some deeply troubling U.S. history that some in today's biotechnology industry and many bioethicists have not completely abandoned.
At the turn of the 20th century, the cousin of Charles Darwin, Francis Galton, launched a pseudo-scientific movement known as "eugenics"...
Related Articles
By Dan Falk, Nautilus | 08.20.2026
The pseudoscience of eugenics, founded on the mistaken notion that nature envisions some “right” combination of genes, and that selective breeding can improve the human race, is making a comeback. While the heyday of eugenics was a century ago, the...
By Emily Packard Dawson and Lainie Friedman Ross, MedPage Today | 08.18.2026
Few things evoke a greater sense of desperation than a parent seeking an experimental treatment for their child. That desperation can make even extraordinary risks seem worth taking. This dynamic has come into stark relief after Mei, a 6-year-old girl...
By Gina Kolata , The New York Times | 07.21.2026
Without fail, David Liu of the Broad Institute gets at least 20 messages every week from desperate parents. Their child, they’ll explain, has an ultrarare and devastating disorder caused by a mutant gene. Can he help them develop a gene...
By Abigail Ruhman , Association of Health Care Journalists | 07.10.2026
The words reporters use and how publications tell stories can play a significant role in challenging ideas that are harmful to people with disabilities, according to a panel at HJ26.
Leading journalists and disability advocates said reporters and editors...