Heritable human genome editing: Who decides? Science or society?
By Françoise Baylis,
Journal of Medical Ethics Blog
| 10. 11. 2021
Many describe the move from bench to bedside (from basic science to therapeutic or preventive applications) as a sprint – a short quick race. Others suggest that the race (such as it is) is more like hurdles given the many obstacles that must be overcome. Still others prefer to think of the scientific endeavour as a shuttle hurdles relay – a race that requires a team effort. There is competition, but also collaborative ambition. And finally, there are some for whom science is more like a marathon (perhaps, a marathon with hurdles and teammates).
In my book Altered Inheritance: CRISPR and the ethics of human genome editing I suggest that science is like orienteering. It is an endurance sport; it can be an individual competition, a team relay or a marathon event:
[T]he runners have to maneuver around obstacles while navigating difficult and unmarked terrain. Along the way, choices have to be made—take the shorter distance with hills, streams, marshes, boulders, ditches, fences, and wildebeests, or take the longer winding road with fewer obstacles—all the while keeping in mind the...
Related Articles
By Dr. Coco Newton, Progress Educational Trust | 03.30.2026
Have you ever wondered what it means to have dozens of half-siblings across the world – or to never know where half of your genetic identity comes from? A recent episode of Zembla explores the human consequences of the global...
By Marcelo Jauregui-Volpe, Wired | 04.24.2026
Two companies that launched last year with plans to create gene-edited babies have already shut down, citing money issues and internal conflict.
One of them, Manhattan Genomics of New York, closed abruptly shortly after announcing a team of scientific advisers...
By Alexandre Piquard, Le Monde [cites Katie Hasson] | 04.27.2026
"Si on en prouve la sûreté, nous croyons que l’édition préventive du génome pourrait être l’une des technologies de santé les plus importantes du siècle. » Lucas Harrington explique ainsi le but de son entreprise Preventive : créer des bébés génétiquement modifiés...
By Abby Vesoulis, Mother Jones | 04.18.2026
Two years ago, we devoted an entire issue to the rise of the American oligarchy. Since then, our oligarchic system has become more entrenched and pervasive, revolving around a small crew of tech titans whose quest for wealth and...