Ethical Imaginaries
By Gina Maranto, Biopolitical Times guest contributor
| 03. 30. 2011
Is each of us morally obligated to volunteer as a subject for biomedical research? Are we blameworthy if we don't sign up to participate in clinical trials? Of the several proponents of this startling notion, bioethicist John Harris put the case perhaps most forcefully in a 2005 article in the Journal of Biomedical Ethics. He contends that
the obligation to participate in research should be compelling for anyone who believes there is a moral obligation to help others, and/or a moral obligation to be just and do one's share. Little can be said to those whose morality is so impoverished that they do not accept either of these two obligations.
According to Harris, even children (providing they are competent) bear this obligation, via their parents.
In the current Hastings Center Report [subscription only], Stuart Rennie examines this point of view. He surveys three arguments advanced singly or in concert by those who claim participation is a moral imperative:
- the "rescue" argument: if one fails to participate in medical research, one fails to prevent harms and is blameworthy...
Related Articles
By Grace Won, KQED [with CGS' Katie Hasson] | 12.02.2025
In the U.S., it’s illegal to edit genes in human embryos with the intention of creating a genetically engineered baby. But according to the Wall Street Journal, Bay Area startups are focused on just that. It wouldn’t be the first...
Several recent Biopolitical Times posts (1, 2, 3, 4) have called attention to the alarmingly rapid commercialization of “designer baby” technologies: polygenic embryo screening (especially its use to purportedly screen for traits like intelligence), in vitro gametogenesis (lab-made eggs and sperm), and heritable genome editing (also termed embryo editing or reproductive gene editing). Those three, together with artificial wombs, have been dubbed the “Gattaca stack” by Brian Armstrong, CEO of the cryptocurrency company...
Alice Wong, founder of the Disability Visibility Project, MacArthur Genius, liberationist, storyteller, writer, and friend of CGS, died on November 14. Alice shone a bright light on pervasive ableism in our society. She articulated how people with disabilities are limited not by an inability to do things but by systemic segregation and discrimination, the de-prioritization of accessibility, and the devaluation of their lives.
We at CGS learned so much from Alice about disability justice, which goes beyond rights...
By Adam Feuerstein, Stat | 11.20.2025
The Food and Drug Administration was more than likely correct to reject Biohaven Pharmaceuticals’ treatment for spinocerebellar ataxia, a rare and debilitating neurodegenerative disease. At the very least, the decision announced Tuesday night was not a surprise to anyone paying attention. Approval...