'Designer baby' rules up for debate (UK)
By BBC News,
BBC News
| 07. 17. 2004
The Human Fertilisation and Embryology Authority (HFEA) is to debate its policy on creating babies who can help sick siblings.
It will consider a doctor's request to select an embryo for a Northern Ireland couple that is a blood match with their son, who has a rare blood disorder.
Currently embryos can only be screened for serious genetic disorders.
Dr Mohamed Taranissi, the director of London's Assisted Reproduction Gynaecology Centre, is pursuing a rule change in a bid to help two-year-old Joshua Fletcher, from Moira, County Down.
Joshua has a potentially fatal blood disorder called Diamond Blackfan anaemia (DBA), which can be treated by using stem cells to stimulate his body to produce healthy red blood cells.
| |
We only want to give our son the best chance for a cure for a condition which could take his life
Joe Fletcher
Father of baby Joshua |
Neither his parents, Joe and Julie, nor his five-year-old brother Adam are close enough matches to give him the stem cells he needs.
But IVF technology...
Related Articles
By Antonio Regalado, MIT Technology Review | 10.31.2025
A West Coast biotech entrepreneur says he’s secured $30 million to form a public-benefit company to study how to safely create genetically edited babies, marking the largest known investment into the taboo technology.
The new company, called Preventive, is...
By Emily Mullin, Wired | 10.30.2025
In 2018, Chinese scientist He Jiankui shocked the world when he revealed that he had created the first gene-edited babies. Using Crispr, he tweaked the genes of three human embryos in an attempt to make them immune to HIV and...
By Abby McCloskey, The Dallas Morning News | 10.10.2025
We Texans like to do things our way — leave some hide on the fence rather than stay corralled, as goes a line in Wallace O. Chariton’s Texas dictionary This Dog’ll Hunt. Lately, I’ve been wondering what this ethos...
By Jay S. Kaufman, Los Angeles Review of Books | 09.27.2025
This is the 10th installment in the Legacies of Eugenics series, which features essays by leading thinkers devoted to exploring the history of eugenics and the ways it shapes our present. The series is organized by Osagie K. Obasogie in...