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During his 2015 State of the Union address, then-President Barack Obama announced what he promised would be an ambitious public health project. “Tonight, I’m launching a new Precision Medicine Initiative to bring us closer to curing diseases like cancer and diabetes...

This is the 15th installment in the Legacies of Eugenics series, which features essays by leading thinkers devoted to exploring the history of eugenics and the ways it shapes our present. You can read the first part here. The series...

Justin Schleede reaches onto a black lab bench to pick up a tray of small plastic tubes.

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"If proven to be safe, we believe preventive gene editing could be one of the most important health technologies of...

By Edie Lau, Sacramento Bee | 09.10.2005
Ten months after California voters approved a special program for stem cell research, the first grants, totaling $38.9 million over...
By Los Angeles Times, Los Angeles Times | 09.10.2005

California's stem cell research agency awarded the first of a planned $3 billion in grants Friday, announcing that a little...

By Bill Ainsworth, San Diego Union Tribune | 09.10.2005
California's groundbreaking stem cell agency yesterday announced its first grants to train a new generation of scientists in a potentially...
By Josef Tayag, The Greenlining Institute | 09.09.2005

After losing half of one of my lungs to tuberculosis while volunteering in the Andes last year, I assumed that...

By Laura Mecoy, Sacramento Bee | 09.08.2005
State agency is betting on novel way to fund awards amid legal challenge.

LOS ANGELES - The panel overseeing the...
By Charles Halpern | 09.08.2005

September 8, 2005

Dear Chairman Klein and Members of the Independent Citizen's Oversight Committee:

I reviewed the agenda for the...

Press Statement

Governing board is also failing to fulfill its promises of health benefits and financial returns for the state, says Center for Genetics and Society

The governing board of California's stem cell research program is moving too fast by planning to announce grant recipients at its meeting tomorrow in Sacramento, according to the Center for Genetics and Society, a public interest group.

"The board must address several key issues before it is ready to announce grant recipients," said Marcy Darnovsky, the associate executive director of the Center. "Most importantly, the stem cell program doesn't have any money. It is irresponsible for its leaders to promise grants that they may be unable to deliver."

The California Institute for Regenerative Medicine (CIRM) was created by last year's Proposition 71 to issue grants, funded by bonds, to support stem cell research. It has been unable to issue bonds because the constitutionality of Proposition 71 is being challenged in the courts.

"The announcement would continue a pattern of doing things fast at the expense of doing things right," added Jesse Reynolds, director of the program on biotechnology accountability at the Center. "Good policy would be guided by the availability of resources, rather than a concern with a public relations campaign."

At a recent subcommittee, ICOC members agreed that the institute should move forward with the grant announcements in order to improve public relations, even though the CIRM does not have funds to award.

"The Institute must also decide who will own - and profit from - any discoveries made using state funds," added Ms. Darnovsky. "It would be a violation of the voters' trust if the Institute fails to ensure that any treatments developed with public funds are widely accessible, or if it rejects the possibility of the state receiving a share of the profits."

Other critics of CIRM have highlighted the procedural failures of the ICOC and its advisory groups. In a letter to the ICOC, public interest attorney Charles Halpern said that a "system that permits intelligent participation by the ICOC in the grants selection process must be developed before any grants are awarded. The system presented in this Agenda does not measure up."

Halpern also notes that it is inappropriate for the ICOC to issue grants without first putting in place a mechanism to assure that grants recipients will not use the skills or materials developed with public funds to support any effort toward reproductive cloning. Although human reproductive cloning is prohibited in California, there are no laws addressing it in 39 states or at the federal level.

Mr. Halpern's letter is available at http://www.genetics-and-society.org/policies/california/halpern20050908icoc.html . A letter from the Center for Genetics and Society to the ICOC concerning intellectual property is at http://www.genetics-and-society.org/resources/cgs/20050908_cirm_letter.html .


Contact:
Parita Shah
310-403-8765

Jesse Reynolds
510-625-0819 x308


 

By Jesse Reynolds and Marcy Darnovsky | 09.08.2005
To the Independent Citizens' Oversight Committee of the California Institute for Regenerative Medicine:

We are writing to register our concerns...