You Discovered Your Genetic History. Is It Worth the Privacy Risk?
By Monica Rodriguez,
Fortune
| 09. 10. 2018
Kylie Charles spent years carefully weighing the pros and cons of genetic testing until her curiosity got the better of her. The 36-year-old writer yearned to know more about her distant father and his family history. All she knew was what he had told her, and it wasn’t much. It had been nearly 14 years since he last wrote her, and years more since they spoke, when Charles chose to carve out the missing fragments of her genetic history for herself.
While the process of producing a sufficient saliva sample and sending it off was tediously routine, Charles was unusual among the millions looking for answers about their family history in wanting to know what could happen to her DNA data after all is sequenced and settled.
Charles, who asked to use a pseudonym to protect her anonymity, is not your average consumer. She was so concerned about maintaining her privacy that when she finally settled on using AncestryDNA, a subsidiary of Ancestry.com, in March, she did so under a fabricated name for fear that her genetic information might somehow...
Related Articles
By Ann E. Marimow and J. David Goodman, The New York Times | 09.22.2026
Justice Elena Kagan on Tuesday refused to intervene in a high-profile custody battle that involved difficult questions surrounding surrogacy and abortion, leaving in place a lower-court order that gave custody to the biological parents in the dispute.
The case drew...
By Anna Collinson and Jo Adnitt, BBC | 08.18.2026
At least 30 children, most of them British, are feared to have been conceived by IVF treatment in northern Cyprus using the wrong sperm or egg donors.
In each case, the parents suspect they did not get the donors they...
By Hamed Aleaziz, The New York Times | 08.13.2026
Immigrants at Ellis Island undergoing a medical inspection | Photo by The New York Public Library on Unsplash
In 1924, Congress sent a message to the world: We are no longer ready to take “your tired, your poor, your huddled...
By Editors, Nature | 08.18.2026
Shinya Yamanaka doesn’t see himself as a celebrity. But people do recognize the stem-cell researcher when he’s out for a run, often while training for a marathon, on the streets of Kyoto, Japan.
Many of them call out words of...