You Discovered Your Genetic History. Is It Worth the Privacy Risk?
By Monica Rodriguez,
Fortune
| 09. 10. 2018
Kylie Charles spent years carefully weighing the pros and cons of genetic testing until her curiosity got the better of her. The 36-year-old writer yearned to know more about her distant father and his family history. All she knew was what he had told her, and it wasn’t much. It had been nearly 14 years since he last wrote her, and years more since they spoke, when Charles chose to carve out the missing fragments of her genetic history for herself.
While the process of producing a sufficient saliva sample and sending it off was tediously routine, Charles was unusual among the millions looking for answers about their family history in wanting to know what could happen to her DNA data after all is sequenced and settled.
Charles, who asked to use a pseudonym to protect her anonymity, is not your average consumer. She was so concerned about maintaining her privacy that when she finally settled on using AncestryDNA, a subsidiary of Ancestry.com, in March, she did so under a fabricated name for fear that her genetic information might somehow...
Related Articles
By Darren Incorvaia, Fierce Biotech | 05.28.2025
An international group of gene editing leaders has put out a call for a 10-year ban on heritable human genome editing (HHGE), extending a moratorium that was first proposed in the fallout of a Chinese researcher’s widely decried use of...
Last week, May 21–23, a broad range of experts gathered in Boston to discuss the future of powerful biotechnologies with the potential to change what it means to be human. The fourth in a series of international Summits on human genome editing, this event was organized by the Global Observatory for Genome Editing, which “seeks to expand the range of questions arising at the frontiers of emerging biotechnologies … and fosters international, interdisciplinary, and cross-sectoral dialogue.” Like previous Summits...
By Christine Fernando, Associated Press | 05.20.2025
Days after a bombing outside a Southern California fertility clinic, a White House official confirmed Tuesday that the Trump administration is reviewing a list of recommendations to expand access to in vitro fertilization.
President Donald Trump signed an executive order...
By M. Genries, A. Cohen, and L. Mareschal, Franceinfo | 05.03.2025