You Discovered Your Genetic History. Is It Worth the Privacy Risk?
By Monica Rodriguez,
Fortune
| 09. 10. 2018
Kylie Charles spent years carefully weighing the pros and cons of genetic testing until her curiosity got the better of her. The 36-year-old writer yearned to know more about her distant father and his family history. All she knew was what he had told her, and it wasn’t much. It had been nearly 14 years since he last wrote her, and years more since they spoke, when Charles chose to carve out the missing fragments of her genetic history for herself.
While the process of producing a sufficient saliva sample and sending it off was tediously routine, Charles was unusual among the millions looking for answers about their family history in wanting to know what could happen to her DNA data after all is sequenced and settled.
Charles, who asked to use a pseudonym to protect her anonymity, is not your average consumer. She was so concerned about maintaining her privacy that when she finally settled on using AncestryDNA, a subsidiary of Ancestry.com, in March, she did so under a fabricated name for fear that her genetic information might somehow...
Related Articles
By Emily Baumgaertner Nunn, The New York Times | 06.30.2026
A research program at the National Institutes of Health released the world’s largest database of human genomes and paired them with clinical data, officials announced Tuesday, paving the way for a new era of study in personalized medicine.
The All...
The title of this book is clever, not least because it is borrowed from a very secret society of a dozen Stanford students. Theo Baker, a gregarious computer science freshman, was interviewed by the hyper-rich anonymous entrepreneur who quietly assembled the members. The unspoken suggestion was that he might consider hiring some of the members in service of acquiring his next billion. (Either Baker was not offered a place or he is not admitting it.) Such are the ways of...
By Mustapha Bature Sallama, Modern Ghana | 06.11.2026
In much of West Africa, a woman who cannot bear children does not merely face a medical condition. She faces a verdict. Her marriage may unravel. Her community may turn cold. Her identity, in a social order that ties womanhood...
By Anna Rogers, Mother Jones | 06.19.2026