About MVI | MVI Working Group | Gender Justice & Disability Rights Coalition
Coming soon: Social Justice and Human Rights Principles for Global Deliberations on Heritable Genome Editing
The Gender Justice and Disability Rights Coalition on Heritable Genome Editing is part of CGS’ Missing Voices Initiative and was launched as part of global commitments to the Technology and Innovation Action Coalition of the Generation Equality Forum. The Coalition is developing principles, tools, and model policies to centralize gender justice and disability rights in public discussions and policymaking regarding heritable genome editing. The Coalition is made up of 16 feminist advocates and scholars from 10 countries who come from a range of civil society organizations and academic institutions committed to feminist, disability rights, anti-eugenic, and intersecting justice-oriented perspectives. Gender justice and disability rights are crucial lenses through which to challenge heritable genome editing, prioritizing women and pregnant people’s health, rights, and freedom from exploitation, and challenging the notion that our world and our families are better off without people with disabilities. These two lenses address intersecting concerns related to racial justice, Indigenous sovereignty, LGBTQ rights, environmental justice, human rights, and the rights of those who would be born through this technology. Voices from our fields and communities must be meaningfully included in public, policy, or scientist-dominated conversations; to date, this has not been the case. The Coalition aims to change this.
Program Director, Gen-ethisches Netzwerk e.V. (Gen-ethical Network)
Berlin, Germany
Professor of law, ethics and biotechnology, department of legal theory and legal history, Vrije Universiteit Amsterdam
Amsterdam, North Holland, Netherlands
Canada Research Chair in the Politics of Reproduction; Assistant Professor in the Department of Political Science, University of Waterloo
Waterloo, Ontario, Canada
Co-founder and Strategic Advisor, Plan C Pills
Los Angeles, California, United States
Postdoctoral Fellow, Gender Studies Program, Faculty of Humanities and Social Sciences, Ben-Gurion University of the Negev
Be'er Sheva, Israel
Centre for Disability Law and Policy, University of Galway
Galway, Connacht, Ireland
Co-Founder, Pro-Choice Alliance for Responsible Research
Los Angeles, California, United States
Profesora Asociada, Escuela de Sociología, Universidad Diego Portales y Directora Núcleo Milenio Discapacidad y Ciudadanía (Director Millenium Nucleus Disability and Citizenship)
Santiago, Santiago, Chile
Co-founder and Board Member, Our Bodies Ourselves
Boston, Massachusetts, United States
Professor, Department of Sociology, University of Cape Town
Cape Town, Western Cape, South Africa
Legal Director, ASAN (Autistic Self Advocacy Network)
Raleigh, North Carolina, United States
Associate Professor of Sociology at the Department of Philosophy, Universidad de Guanajuato, Mexico
Guanajuato, Guanajuato, Mexico
Senior staff attorney, Disability Rights Education and Defense Fund (DREDF)
Berkeley, California, United States