Gender Justice and Disability Rights Coalition on Heritable Genome Editing


About MVI | MVI Working Group | Gender Justice & Disability Rights Coalition


Just Released! Social Justice and Human Rights Principles for Global Deliberations on Heritable Human Genome Editing


The Gender Justice and Disability Rights Coalition on Heritable Genome Editing is part of CGS’ Missing Voices Initiative and was launched as part of global commitments to the Technology and Innovation Action Coalition of the Generation Equality Forum. The Coalition is developing principles, tools, and model policies to centralize gender justice and disability rights in public discussions and policymaking regarding heritable genome editing. The Coalition is made up of 16 feminist advocates and scholars from 10 countries who come from a range of civil society organizations and academic institutions committed to feminist, disability rights, anti-eugenic, and intersecting justice-oriented perspectives.

Gender justice and disability rights are crucial lenses through which to challenge heritable genome editing, prioritizing women and pregnant people’s health, rights, and freedom from exploitation, and challenging the notion that our world and our families are better off without people with disabilities. These two lenses address intersecting concerns related to racial justice, Indigenous sovereignty, LGBTQ rights, environmental justice, human rights, and the rights of those who would be born through this technology. Voices from our fields and communities must be meaningfully included in public, policy, or scientist-dominated conversations; to date, this has not been the case. The Coalition aims to change this. 


Coalition name with a banner below that says members. Below that are the logos of CGS, ASAN, DREDF, Genetic Suport Foundation, PCARR, Our Bodies Ourselves Today, biorespect, and GeN


Members whose names are followed by an * are individual members. Their affiliations are included for identification purposes only. 

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Program Director, Gen-ethisches Netzwerk e.V. (Gen-ethical Network)

Berlin, Germany

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Professor of law, ethics and biotechnology, department of legal theory and legal history, Vrije Universiteit Amsterdam

Amsterdam, North Holland, Netherlands

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Canada Research Chair in the Politics of Reproduction; Assistant Professor in the Department of Political Science, University of Waterloo

Waterloo, Ontario, Canada

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Co-founder and Strategic Advisor, Plan C Pills

Los Angeles, California, United States

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Postdoctoral Fellow, Gender Studies Program, Faculty of Humanities and Social Sciences, Ben-Gurion University of the Negev

Be'er Sheva, Israel

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Centre for Disability Law and Policy, University of Galway

Galway, Connacht, Ireland

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Co-Founder, Pro-Choice Alliance for Responsible Research

Los Angeles, California, United States

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Programs Coordinator, ASAN (Autistic Self Advocacy Network)

New Hampshire, United States

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Profesora Asociada, Escuela de Sociología, Universidad Diego Portales y Directora Núcleo Milenio Discapacidad y Ciudadanía (Director Millenium Nucleus Disability and Citizenship)

Santiago, Santiago, Chile

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Co-founder and Board Member, Our Bodies Ourselves

Boston, Massachusetts, United States

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Professor, Department of Sociology, University of Cape Town

Cape Town, Western Cape, South Africa

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Postdoc in Social- and Cultural Geography, University of Bern

Bern, Switzerland

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Scientific Associate, biorespect

Basel, Switzerland

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Executive Director, Genetic Support Foundation

Olympia, Washington, United States

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Legal Director, ASAN (Autistic Self Advocacy Network)

Raleigh, North Carolina, United States

(through February 2024)

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Associate Professor of Sociology at the Department of Philosophy, Universidad de Guanajuato, Mexico

Guanajuato, Guanajuato, Mexico

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Co-Founder and Consultant, Our Bodies Ourselves

Boston, Massachusetts, United States

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Senior staff attorney, Disability Rights Education and Defense Fund (DREDF)

Berkeley, California, United States