Opinion: ADA and the new eugenics
By Andrew J. Imparato and Anne C. Sommers,
Washington Examiner
| 08. 10. 2005
With the mapping of the human genome, potential for improving the quality of life for people with painful and degenerative conditions has brought new hope in many circles. To be sure, the prospect of cures and disease prevention has widespread appeal. Yet are we ready to use genetic engineering to prevent the birth of any baby with Down syndrome, dwarfism or genetic forms of deafness or mental health conditions? What about genetic predispositions for cancer or Alzheimer's disease? Who decides?
Last month America marked the 15th anniversary of the signing of the Americans with Disabilities Act, a landmark civil rights law recognizing that disability is a natural part of human diversity that in no way should limit a person's right to make choices, pursue meaningful careers and participate fully in all aspects of society.
The ADA stands in marked contrast to some deeply troubling U.S. history that some in today's biotechnology industry and many bioethicists have not completely abandoned.
At the turn of the 20th century, the cousin of Charles Darwin, Francis Galton, launched a pseudo-scientific movement known as "eugenics"...
Related Articles
By Alexandre Piquard, Le Monde [cites CGS' Katie Hasson] | 05.22.2026
"If proven to be safe, we believe preventive gene editing could be one of the most important health technologies of the century." This is how Lucas Harrington explained the goal of his company Preventive: to create genetically modified babies. Trying...
By Daniel Shanahan, Los Angeles Review of Books | 05.31.2026
This is the 15th installment in the Legacies of Eugenics series, which features essays by leading thinkers devoted to exploring the history of eugenics and the ways it shapes our present. You can read the first part here. The series...
By Laura Hughes, Financial Times | 05.20.2026
Sophie and her husband are set to spend more than £100,000 in travel and medical bills as they fly between England and the US in their bid to have another child.
The couple are undergoing IVF treatment in New York...
By Rebecca Roberts, The Scientist | 05.19.2026
Scientists have had prenatal gene therapy in their sights for decades; by treating the fetus in utero, they can potentially prevent the long-term damage caused by severe, early-onset genetic disorders. Despite its success in preclinical studies, the method has...