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| Talking Biopolitics is Back!by Jessica Cussins, Biopolitical TimesMay 13th, 2013A series of live web-based conversations with cutting-edge thinkers on the social meaning of human biotechnologies will be kicking off next week. RSVP now to join the conversations!
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| Prenatal DNA Sequencingby Antonio Regalado, MIT Technology ReviewApril 23rd, 2013Reading the DNA of fetuses is the next frontier of the genome revolution. Do you really want to know the genetic destiny of your unborn child? |
| Tough Calls on Prenatal Tests by Christopher Weaver, Wall Street JournalApril 3rd, 2013New prenatal gene tests are reshaping care for expectant mothers, but their rapid rollout has raised fears that poorly understood results could lead to confusion among patients and doctors. |
| Surrogate Offered $10,000 to Abort Babyby Elizabeth Cohen, CNNMarch 6th, 2013A surrogate refused to have an abortion after severe abnormalities were spotted on an ultrasound and moved to Michigan, where she became the legal mother. |
| Meet the New Eugenics, Same as the Old Eugenicsby Gina Maranto, Biopolitical Times guest contributor, Biopolitical TimesMarch 4th, 2013According to a new wave of eugenic advocacy, “we” have a “moral obligation” to enhance future generations.
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| Anatomy of a Webpage, Part 3: Selling “Peace of Mind”by George Estreich, Biopolitical Times guest contributorNovember 13th, 2012New developments in prenatal tests are triggering aggressive - and often misleading - marketing. Thankfully, there are signs of push-back from a society that is learning that people are more than their syndromes.
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| Anatomy of a Webpage, Part 2: Preconception Servicesby George Estreich, Biopolitical Times guest contributorOctober 17th, 2012People living with genetic diseases become medicalized abstractions of risk and defect in the slick marketing of fetal gene tests. More than a matter of semantics, such simplification has negative consequences for all. |
| Anatomy of a Webpage: Marketing Fetal Gene Tests and Sequenom’s MaterniT21by George Estreich, Biopolitical Times guest contributorSeptember 24th, 2012In the age of genomics, whole-chromosome conditions are only the beginning. Our ability to sample fetal DNA from maternal blood means that not only Down syndrome, but before long any condition with a genetic component, any “risk,” can be forecast.
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| The Dangers of Fetal Engineering by Emily Beitiks, Biopolitical TimesAugust 17th, 2012A recent study considers the troubling off-label use of a risky drug in pregnant women whose baby girls may not be born with normal-looking genitals.
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| Couples Use IVF to Pick Genesby Julia Medew, The AgeJuly 3rd, 2012Fertile women with genes that predispose them to breast and ovarian cancers are using preimplantation genetic diagnosis to select embryos without the genes. |
| Designer Babies in Popular Cultureby Jessica Cussins, Biopolitical TimesJune 21st, 2012The Whitest Kids U’Know’s comedic parody of genetic counseling is reminiscent of a similar scene in GATTACA.
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| NC Bill Supports Compensation for Eugenics Victimsby Martha Wagooner, New ObserverMay 16th, 2012Victims of North Carolina's decades-long forced sterilization program would receive $50,000 each under a bill filed Wednesday that would make the state the first to compensate people who lost their child-bearing abilities under the once-common practice. |
| Will Gattaca Come True?[Quotes CGS's Marcy Darnovsky]by Mara Hvistendahl, SlateApril 27th, 2012Noninvasive, early fetal tests for sex, paternity, and chromosomal conditions will change pregnancy dramatically — and raise tricky ethical questions. |
| Genetic Discrimination and Ron Paulby Emily Beitiks, Biopolitical TimesJanuary 9th, 2012Genetic discrimination in Canada today is similar to what the US faced prior to the Genetic Information Nondiscrimination Act of 2008, opposed by presidential candidate Ron Paul. |
| The quest for the perfect babyby Meir Brezis, Haaretz [Israel]Should parents be able to sue doctors for failing to prevent the birth of a child with a defect? That is a question facing the [Israeli] Supreme Court, which has been asked to recognize 'wrongful birth.' |
| The Blade Runner's Personal Victoryby Pete Shanks, Biopolitical TimesAugust 31st, 2011Oscar Pistorius, running on two prosthetic legs, reached the semifinals of the track and field World Championship 400m race, encouraging some potentially important discussions. |
| If You Really, Really Wanted a Girl...by Pam Belluck, New York TimesAugust 20th, 2011Tests using DNA to determine a fetus’s sex were shown to be remarkably accurate, but the tests also raise ethical questions: whether couples will abort fetuses of an unwanted sex.
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| One Step Closer to Designer BabiesNew Noninvasive Prenatal Genetic Testing Could Change Human Pregnancy Foreverby Marcy Darnovsky, Science ProgressApril 22nd, 2011A new approach to testing the genes of early-stage fetuses could radically alter the experience of pregnancy and parenting from as early as five weeks, leading to a potentially dangerous moral quandary. |
| Eugenics lawmaker resignsby Shira Schoenberg, Concord MonitorMarch 15th, 2011State Rep. Martin Harty resigned yesterday, facing outrage from constituents, colleagues and strangers over comments he made endorsing eugenics for what he called "defective people." |
| Forced sterilization considered in a UK court
by Doug Pet, Biopolitical TimesFebruary 17th, 2011A British special court delayed its ruling on whether or not a woman with “significant learning disabilities” should be forcibly sterilized.
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| Is forced sterilization ever OK?[Interview with CGS's Doug Pet]by Tracy Clark-Flory, SalonFebruary 16th, 2011A U.K. court considers the question in the case of a pregnant woman with significant learning disabilities.
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| When America believed in eugenicsby Victoria Brignell, NewStatesmanDecember 10th, 2010Victoria Brignell investigates America's past enthusiasm for eugenics and the profound suffering this inflicted on people with disabilities.
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| Paul S. Miller, Advocate for Disabled, Dies at 49by Dennis Hevesi, New York TimesOctober 20th, 2010In recent years, Mr. Miller focused on tensions between disability rights and genetic science. In a paper titled “Avoiding Genetic Genocide,” Mr. Miller criticized scientists for what he saw as their eagerness to use genetics to produce “perfect” humans. |
| Two New Publications from Generations Aheadby Marcy Darnovsky, Biopolitical TimesDecember 22nd, 2009Reports from convenings on DNA forensics and communities of color, and on discussions among disability rights and reproductive rights and justice advocates. |
| The Prenatally and Postnatally Diagnosed Conditions Awareness Act [PDF]October 16th, 2008The Prenatally and Postnatally Diagnosed Conditions Awareness Act, co-sponsored by Senators Kennedy and Brownback and signed into law in October 2008, is a positive step toward providing better information and support to pregnant women and new mothers whose fetus or newborn is diagnosed with a disability. This information sheet highlights the Act’s benefits and identifies some of the issues to monitor in its implementation. |
| Conceiving the Future [PDF]Reproductive-justice activists on technology and policyby Andi Zeisler and Emily Galpern, BitchJune 6th, 2008Emerging reproductive and genetic technologies have raised critical issues for social-justice movements. This roundtable discussion features some of the women who've been engaged in these national conversations. |
| Couples Could Win Right to Select Deaf Babyby Richard Gray, TelegraphApril 14th, 2008Deaf couples could be allowed to use embryo-screening technology and choose to have a deaf child, after an amendment to a controversial bill to overhaul the UK's oversight of ARTs. |
| Is it wrong to select a deaf embryo?by Clare Murphy, BBC NewsMarch 10th, 2008New fertility legislation will make it illegal to use embryos with a known genetic abnormality in IVF treatment when ones without the same defect are available. |
| Deaf demand right to designer deaf childrenby Sarah-Kate Templeton, The Times (UK)December 23rd, 2007Deaf parents should be allowed to screen their embryos so they can pick a deaf child over one that has all its senses intact, according to the chief executive of the Royal National Institute for Deaf and Hard of Hearing People. |
| Prenatal Test Puts Down Syndrome in Hard Focusby Amy Harmon, New York TimesMay 10th, 2007. . . an unusual campaign being undertaken by parents of children with Down syndrome who worry about their future in the face of broader prenatal testing that could sharply reduce the number of those born with the genetic condition. |
| Quality-controlled embryosby Marcy Darnovsky, Biopolitical TimesJanuary 22nd, 2007Last week's news about the "world's first embryo bank" brought much-needed attention to the accelerating marketization of baby-making. |
| Building Movements [PDF]Disability, Race, Gender, Sexuality and Genetic Technologiesby Sujatha JesudasonNovember 9th, 2006Presentation at the Conference on Representing Disability: Theory, Policy, Practice, Haverford College |
| The Future of Bioethics in a Divided DemocracyGenetic CrossroadsAugust 4th, 2006CGS Associate Director Marcy Darnovsky spoke about "Democratizing Biopolitics: Civil Society and the Future of Human Biotechnology" on a panel at the Future of Bioethics in a Divided Democracy conference held in Albany, NY on July 13 and 14. |
| UN debates abortion of disabled foetusesby Irwin Arieff, ReutersFebruary 5th, 2005"U.N. diplomats drafting an international treaty on the rights of the disabled debated a possible ban on the abortion of foetuses with disabilities in an emotional negotiating session that ended on Friday." |
| Genetics: Deaf By Designby Carina Dennis, NatureOctober 20th, 2004"Employing genetic diagnosis to avoid having a baby with a disability is controversial enough. But a minority of deaf people would consider testing to ensure that they had a deaf child." |
| The New Eugenicsby Nicholas D. Kristof, New York TimesJuly 4th, 2003One of the most profound and layered questions raised by recent genetic advances is this: Do we as a species still want babies born with genetic disabilities? |
| Disability Equality and Prenatal Testing: Contradictory or Compatible? [PDF]by Adrienne Asch, Florida State University Law ReviewNovember 30th, 2002"Is it possible for the same society to espouse the goals of including people with disabilities as fully equal and participating members and simultaneously promoting the use of embryo selection and selective abortion to prevent the births of those who would live with disabilities? As currently practiced and justified, prenatal testing and embryo selection cannot comfortably coexist with society’s professed goals of promoting inclusion and equality for people with disabilities. Nonetheless, revamped clinical practice and social policy could permit informed reproductive choice and respect for current and future people with disabilities." |
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