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About Disability & Human Biotechnology


Disability rights advocates have been among the earliest and most vocal critics of emerging genetic and reproductive technologies. Many people with disabilities are acutely aware that technologies enabling the selection of “good” genes and “normal” traits can devalue disabled people’s bodies and ultimately their lives.

This concern is informed by past and ongoing discrimination against people with disabilities that often includes brutal practices. For example, twentieth-century eugenicis­ts in the United States and some European countries sponsored programs that sterilized tens of thousands of disabled people. The Nazi genocide began with doctors and nurses exterminating over 100,000 disabled people in German medical facilities; tens of thousands more perished in concentration camps.

This historical context gives pause to disability rights advocates concerned about existing selection technologies that are increasingly being used to prevent the birth of children with particular traits, as well as future technologies that could be used to modify children’s genes.



The Real Chen Guangcheng Story: Forced Abortion, Eugenics, and the One-Child Policyby Daniel SharpBiopolitical TimesMay 16th, 2012Amidst focus on the domestic and international political aspects of the Chen Guangcheng affair, the media have missed the real issue: force abortion and forced sterilization in China.
Will Gattaca Come True?[Quotes CGS's Marcy Darnovsky]by Mara HvistendahlSlateApril 27th, 2012Noninvasive, early fetal tests for sex, paternity, and chromosomal conditions will change pregnancy dramatically — and raise tricky ethical questions.
$10.3 Million for Eugenics Compensation by Herbert L. WhiteCharlotte PostApril 25th, 2012North Caroliona Governor Bev Perdue’s proposed budget will include $10.3 million for people involuntarily sterilized by the state.
North Carolina Leads the Way in Compensation for Eugenic Sterilization Victimsby Emily BeitiksBiopolitical TimesMarch 22nd, 2012Will North Carolina’s efforts to compensate victims of eugenic sterilization encourage other states to follow suit?
California's Dark Legacy of Forced Sterilizationsby Elizabeth Cohen and John BonifieldCNNMarch 15th, 2012North Carolina's recent confrontation with its eugenic history raises the question: Will California move to confront its own eugenic history?
New Thriller about Eugenics, “the Dirty Little Secret of the Anglo-American Intellectual Elite”by Marcy DarnovskyBiopolitical TimesMarch 15th, 2012How should we understand the attraction of eugenics for liberals and leftists in the early twentieth century?
Sterilized by North Carolina, She Felt Raped Once Moreby David ZucchinoLos Angeles TimesJanuary 25th, 2012North Carolina's recent move to compensate victims of sterilization program isn't enough to resolve the pain of the troubled past.
Payment Set for Those Sterilized in Programby Kim SeversonNew York TimesJanuary 11th, 2012The task force assigned the difficult task of deciding how much to compensate the victims of a North Carolina sterilization program settled on a number on Tuesday.
Genetic Discrimination and Ron Paulby Emily BeitiksBiopolitical TimesJanuary 9th, 2012Genetic discrimination in Canada today is similar to what the US faced prior to the Genetic Information Nondiscrimination Act of 2008, opposed by presidential candidate Ron Paul.
Stem Cell Fraud: A 60 Minutes Investigationby Scott Pelley60 MinutesJanuary 8th, 2012The Internet is full of websites selling unproven stem cell treatments for incurable illnesses. Correspondent Scott Pelley investigates.
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