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About Disability & Human Biotechnology


Disability rights advocates have been among the earliest and most vocal critics of emerging genetic and reproductive technologies. Many people with disabilities are acutely aware that technologies enabling the selection of “good” genes and “normal” traits can devalue disabled people’s bodies and ultimately their lives.

This concern is informed by past and ongoing discrimination against people with disabilities that often includes brutal practices. For example, twentieth-century eugenicis­ts in the United States and some European countries sponsored programs that sterilized tens of thousands of disabled people. The Nazi genocide began with doctors and nurses exterminating over 100,000 disabled people in German medical facilities; tens of thousands more perished in concentration camps.

This historical context gives pause to disability rights advocates concerned about existing selection technologies that are increasingly being used to prevent the birth of children with particular traits, as well as future technologies that could be used to modify children’s genes.



Sterilized by North Carolina, She Felt Raped Once Moreby David ZucchinoLos Angeles TimesJanuary 25th, 2012North Carolina's recent move to compensate victims of sterilization program isn't enough to resolve the pain of the troubled past.
Payment Set for Those Sterilized in Programby Kim SeversonNew York TimesJanuary 11th, 2012The task force assigned the difficult task of deciding how much to compensate the victims of a North Carolina sterilization program settled on a number on Tuesday.
Genetic Discrimination and Ron Paulby Emily BeitiksBiopolitical TimesJanuary 9th, 2012Genetic discrimination in Canada today is similar to what the US faced prior to the Genetic Information Nondiscrimination Act of 2008, opposed by presidential candidate Ron Paul.
Stem Cell Fraud: A 60 Minutes Investigationby Scott Pelley60 MinutesJanuary 8th, 2012The Internet is full of websites selling unproven stem cell treatments for incurable illnesses. Correspondent Scott Pelley investigates.
Unnatural Selection: Is Evolving Reproductive Technology Ushering in a New Age of Eugenics? [Quotes CGS's Marcy Darnovsky]by Carolyn AbrahamsThe Globe and MailJanuary 7th, 2012Modern day assisted reproduction offers a whole new approach to baby-making, one that gives people an unprecedented power to preview, and pick, the genetic traits of their children.
Health Insurance and ‘Genetic Discrimination’: Are Rules Needed? by Carly WeeksThe Globe and MailJanuary 1st, 2012Medical advances mean we can now test for some disease markers – but experts fear this progress will result in insurers and employers using genetic information to deny coverage and benefits.
Thousands Sterilized, a State Weighs Restitutionby Kim SeversonNew York TimesDecember 9th, 2011A task force is calculating North Carolina's obligation to the estimated 7600 victims of its eugenics program from 1933 to 1977, but the issues go deeper than just a dollar amount.
Francis Galton's Novel about Eugenicsby Michael MarshallNew ScientistDecember 5th, 2011The unpublished novel of eugenicist Francis Galton has been published in fragments by the University College London on the 100th anniversary of his death.
Genetic Testing for Down Syndrome: What It Can and Cannot Tell You by Emily BeitiksBiopolitical TimesNovember 10th, 2011Sequenom's new genetic test predicts the presence of Down syndrome at an earlier stage in pregnancy, but parents need more information to accompany the diagnosis.
Sex Selection Game-Changer? New Fetal Gene Test Reveals Sex at 7 Weeksby Doug PetBiopolitical TimesNovember 9th, 2011New non-invasive prenatal testing will enable parents to know a fetus's sex, Down's status, and possibly other traits dramatically earlier in a pregnancy.
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