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About Disability & Human Biotechnology


Disability rights advocates have been among the earliest and most vocal critics of emerging genetic and reproductive technologies. Many people with disabilities are acutely aware that technologies enabling the selection of “good” genes and “normal” traits can devalue disabled people’s bodies and ultimately their lives.

This concern is informed by past and ongoing discrimination against people with disabilities that often includes brutal practices. For example, twentieth-century eugenicis­ts in the United States and some European countries sponsored programs that sterilized tens of thousands of disabled people. The Nazi genocide began with doctors and nurses exterminating over 100,000 disabled people in German medical facilities; tens of thousands more perished in concentration camps.

This historical context gives pause to disability rights advocates concerned about existing selection technologies that are increasingly being used to prevent the birth of children with particular traits, as well as future technologies that could be used to modify children’s genes.



Two New Publications from Generations Aheadby Marcy DarnovskyBiopolitical TimesDecember 22nd, 2009Reports from convenings on DNA forensics and communities of color, and on discussions among disability rights and reproductive rights and justice advocates.
Ted Kennedy: Pro-choice and pro-disability rightsby Marcy DarnovskyBiopolitical TimesSeptember 3rd, 2009As Senator Kennedy knew, there is no contradiction between being deeply pro-choice and deeply pro-disability rights.
The Human Fertilisation and Embryology Bill 2008A Commentaryby David KingApril 15th, 2009The director of Human Genetics Alert offers an analysis of the UK's new law governing human genetic and reproductive technologies.
New Safety, New Concerns In Tests for Down Syndromeby Rob SteinWashington PostFebruary 24th, 2009"We have a history in this country of a eugenics movement where people tried to eliminate certain people from the gene pool. People could start wondering, 'How did you get born?'"
Sarah Palin, Down syndrome, and the abortion debateby Marcy DarnovskyBiopolitical TimesNovember 7th, 2008Two commentaries explain how we can – and should – take prenatal genetic selection out of the abortion debate.
New US Law Supports Parents of Children with Disabilitiesby Jenna BurtonBiopolitical TimesOctober 21st, 2008A bipartisan bill will provide comprehensive information and support to pregnant women and new mothers whose fetus or newborn is diagnosed with a disability.
The Prenatally and Postnatally Diagnosed Conditions Awareness Act [PDF]October 16th, 2008The Prenatally and Postnatally Diagnosed Conditions Awareness Act, co-sponsored by Senators Kennedy and Brownback and signed into law in October 2008, is a positive step toward providing better information and support to pregnant women and new mothers whose fetus or newborn is diagnosed with a disability. This information sheet highlights the Act’s benefits and identifies some of the issues to monitor in its implementation.
Experts Fear Potential Abuses of Genetic Screening[Quotes CGS's Marcy Darnovsky]by Beth WhitehouseNewsdayJuly 18th, 2008Will parents use embryo selection technology to select a child's characteristics the way you can pick the options on a car?
Conceiving the Future [PDF]Reproductive-justice activists on technology and policyby Andi Zeisler and Emily GalpernBitchJune 6th, 2008Emerging reproductive and genetic technologies have raised critical issues for social-justice movements. This roundtable discussion features some of the women who've been engaged in these national conversations.
Couples Could Win Right to Select Deaf Babyby Richard GrayTelegraphApril 14th, 2008Deaf couples could be allowed to use embryo-screening technology and choose to have a deaf child, after an amendment to a controversial bill to overhaul the UK's oversight of ARTs.
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