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Civil Society : Displaying 169-178 of 417


Should Patients Understand that They are Research Subjects? by Jenny ReardonSan Francisco ChronicleMarch 3rd, 2013A routine form at a UCSF doctor's appointment stipulates that your tissues and cells can be collected, and that you have no rights to any "commercially useful products that may be developed."
The Throwawaysby Sara MojtehedzadehGuernicaMarch 1st, 2013In Kenya, doctors are force-sterilizing HIV-positive women—in some cases, without their knowledge.
Justices Wrestle Over Allowing DNA Sampling at Time of Arrestby Adam LiptakThe New York TimesFebruary 26th, 2013The Supreme Court heard arguments in a case that one justice said is "perhaps the most important criminal procedure case that this court has heard in decades.”
Connecting the Neural Dotsby John MarkoffThe New York TimesFebruary 25th, 2013In setting the nation on a course to map the active human brain, President Obama may have picked a challenge even more daunting than ending the war in Afghanistan or finding common ground with his Republican opponents.
Can They Patent Your Genes?by Daniel J. KevlesThe New York Review of BooksFebruary 25th, 2013This spring, the Supreme Court will hear a case that may well decide whether genes can be patented, and the consequences for American biomedicine could be huge.
Faroes’ 50,000 Residents Leap Into DNA Testing Quagmireby John LauermanBloombergFebruary 24th, 2013A proposed plan would decipher the complete DNA sequence of every citizen of the Faroe Islands, but a deeper debate about issues of privacy, ownership, and utility is still needed.
DNA and the Constitution[Editorial]The New York TimesFebruary 24th, 2013The substantial harm to innocent people that could result from the misuse of DNA greatly outweighs the benefits. And the safeguard against such harm is the Fourth Amendment, whose fundamental protections the Maryland court upheld. The Supreme Court should do likewise.
New Guidelines for Genetic Testing in Childrenby Bonnie RochmanTimeFebruary 21st, 2013The American Academy of Pediatrics and the American College of Medical Genetics and Genomics have released a new statement on genetic testing in children, suggesting ways to navigate the ethical, legal, and social complexities.
A Call for International Prohibition of Forced Genital-Normalizing Surgery and Sterilizationby Jessica CussinsBiopolitical TimesFebruary 21st, 2013A new report from the United Nations Special Rapporteur on Torture focuses on human rights abuses in health-care settings, and bolsters LGBTQI activists in their fight against involuntary sterilizations and genital-normalizing surgeries.
We Are Egg Donors: A New Self-Advocacy Community by Jessica CussinsBiopolitical TimesFebruary 19th, 2013Women who have donated their eggs or are considering it can share stories and research, provide mutual support, and leverage their presence beyond that of individual women who are heavily recruited and then instantly forgotten.
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