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About Civil Society & Human Biotechnology


"Civil society" refers to institutional political actors outside of government and private enterprise, typically nonprofit advocacy organizations and foundations. The term "non-governmental organization," or NGO, is closely related.

Civil society organizations have come to play an important role in ensuring the accountability of governments, countering the power of corporations, and contributing to democratic governance.

For most of today’s important issues – war and peace, economic growth and equity, ecological sustainability, race and gender equality, and many others – there are dense networks of civil society institutions. For the issues surrounding human biotechnologies, a civil society infrastructure is just beginning to emerge. 



Is DNA the Next Frontier in Privacy?by Nikhil SwaminathanAljazeera AmericaMay 11th, 2015Obama has called for 1 million people to volunteer their DNA sequences, along with health records and sensor tracking data, but the government is mum on how it will protect people's privacy.
The Blurred Lines of Genetic Data: Practicality, Pleasure and Policingby Jessica CussinsThe Huffington PostMay 8th, 2015Amidst a rumor that Apple may encourage iPhone owners to participate in DNA testing and share their genetic data, shocking news from Idaho is a reminder that we don’t always control what happens with our data, and won’t always like it.
Can we Still Rely on DNA Sampling to Crack Crime?by Danny ShawBBC NewsMay 5th, 2015The new arrangements are so convoluted that even the man responsible for overseeing them has cast doubt as to whether they can work effectively and fairly.
DIY Bio-Engineering: Disrupting Democracyby Colleen CordesBiopolitical Times guest contributorMay 1st, 2015The Do-It-Yourself synthetic biology movement (or, DIY synbio) is not advocating "citizen science," let alone "democratizing science." It's not about science or democracy.
Hi-Tech DNA Machines Cause Concernby Oscar QuineThe IndependentApril 26th, 2015Police forces across the UK are testing technology that allows officers to analyse DNA samples in custody suites, amid fears that civil liberties could be infringed and evidence compromised.
Five Disturbing Things You Didn’t Know About Forensic “Science”by Jordan SmithThe InterceptApril 24th, 2015Last week, it was revealed that the FBI “overstated forensic matches in a way that favored prosecutors in more than 95 percent” of the cases. And this is only the tip of the iceberg when it comes to flawed forensics.
Racial Health Disparities: It’s Inequality, Not Genesby Jessica CussinsBiopolitical TimesApril 23rd, 2015A review of genomic research on racial health disparities in heart disease finds it has made “little or no contribution to our understanding.” A new article in The Atlantic puts that in social, political, and historical context.
Public interest group calls for strengthening global policies against human germline modification[Press statement]April 22nd, 2015“No researcher has the moral warrant to flout the globally widespread policy agreement against altering the human germline.”
Panel discussion on the Ethical and Social Policy Considerations of Novel Techniques for Prevention of Maternal Transmission of Mitochondrial DNA Diseases (March/April 2015) [VIDEO][With CGS's Marcy Darnovsky]
Baby Genes to be Mapped at Birth in Medical Firstby Helen ThomsonNew ScientistApril 8th, 2015Could genome sequencing of newborns give valuable insight or do harm? That's the question US doctors are trying to answer in a pioneering trial starting this month.
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