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About Human Rights & Human Biotechnology


Claims to universal human rights depend, in part, on formal recognition of our common humanity. Many countries use human rights as a broad framework to think about regulatory options for human biotechnologies. International declarations also commonly use this framework. Examples include the Council of Europe's Convention on Human Rights and Biomedicine and UNESCO's Universal Declaration on the Human Genome and Human Rights.

The Convention on Biomedicine and Human Rights, like a number of other international agreements and declarations, rejects biotechnology applications that would alter the genomes of future generations. Manipulating genes in a manner that encodes inequality into our genes could easily unravel centuries of progress toward respecting human worth.



US Doctors Update Gamete Donation Guidelinesby Michael CookBioEdgeSeptember 28th, 2014The American Society for Reproductive Medicine has updated its guidelines for gamete donation in the light of the growing recognition that offspring may have a right to know their genetic parents.
California Bans Coerced Sterilization of Female Inmatesby Corey G. JohnsonCenter for Investigative ReportingSeptember 26th, 2014Gov. Jerry Brown has signed a bill that protects prisoners in county jails, state prisons and other detention centers, after many abuses were uncovered.
An End to Sterilization Abuses in California Prisonsby Jessica CussinsBiopolitical TimesSeptember 26th, 2014The signing of SB 1135 into California law by Gov. Jerry Brown is an important victory in the fight for the remembrance of our state's eugenic history and its ongoing implications.
Surrogacy Boom in Mexico Brings Tales of Missing Money and Stolen Eggsby Jo TuckmanThe GuardianSeptember 25th, 2014Gestational mothers and new parents tell about the dark side of an industry that operates in a legal grey area.
Richard Dawkins Gets it all Wrong, Yet Again by George EstreichSalonSeptember 25th, 2014As a social media event, the Dawkins kerfuffle was fleeting, but as a conversation, it offers a glimpse of a larger question: How do “we” — that is, the non-disabled — think about people with intellectual disabilities?
Under the Skinby Nathaniel ComfortNatureSeptember 18th, 2014Three recent books focus on whether race is biological and therefore "real." But this question is a dead end, a distraction from what is really at stake in this debate: human social equality.
International Surrogacy, Global Consumerism, Harms to Women and Childrenby Carmel Shalev, Biopolitical Times guest contributorSeptember 15th, 2014Medical associations, nations, and the international community must intervene in the unregulated global market for surrogacy to protect, promote and sanction the human dignity and human rights of women and children.
Defending Human Dignityby Michael CookBioEdgeSeptember 13th, 2014Charles Foster has penned defence of “human dignity” as the foundation of bioethics in the Cambridge Quarterly of Healthcare Ethics.
“Evolution right now is in the marketplace”by Pete ShanksBiopolitical TimesSeptember 11th, 2014George Church is as outrageous as ever, while both transhumanist ideas and concerns about increasing inequality are receiving more attention.
A Manifesto for Playing God with Human Evolutionby Carl ElliottNew ScientistSeptember 8th, 2014Fancy living forever, or uploading your mind to the net? The Proactionary Imperative embraces transhumanist dreams, but reminds why we need medical ethics.
An International Agreement on Commercial Surrogacy? by Marcy DarnovskyBiopolitical TimesSeptember 4th, 2014A three-day convening in The Hague brought together scholars, women’s health and human rights advocates, and policymakers from 27 countries to tackle concerns about international commercial surrogacy.
US agency updates rules on sharing genomic databy Richard Van NoordenNature NewsSeptember 1st, 2014Changes clarify procedures for telling participants in NIH-funded studies how their data might be used.
Judge warns privacy of DNA at stake after rulingby Ian DuncanThe Baltimore SunAugust 30th, 2014As Maryland's highest court upheld a rape conviction based on DNA collected at a police station, a veteran judge issued a stark warning about the consequences of the ruling.
When Big Data & Infants' Privacy Collideby  Alison DianaInformation WeekAugust 25th, 2014Technology allows researchers to discover newborns' genetic secrets, but the long-term repercussions worry some parents and privacy advocates.
Interpol Investigates 'Baby Factory' as Man Fathers 16 Surrogate Childrenby Kevin RawlinsonThe GuardianAugust 23rd, 2014Interpol has launched an investigation into an alleged "baby factory" after it emerged that a Japanese businessman had fathered 16 surrogate children and expressed a desire for many more.
Vics to Get Sperm Donor Info with ConsentThe AustralianAugust 21st, 2014Victorians conceived through sperm donation will now be able to find out who their biological father is - but only if he agrees.
California Lawmakers Pass Bill Banning Inmate Sterilizationsby Sharon BernsteinReutersAugust 19th, 2014California lawmakers sent a bill to ban sterilization surgeries on inmates in California prisons to Governor Jerry Brown.
Gender-Biased Sex Selection an Extreme Form and Manifestation of Gender Discrimination and Inequality Against Women, Say UN Women and UNFPAUN WomenAugust 18th, 2014The sharply declining child sex ratio in India has reached emergency proportions and urgent action must be taken to alleviate this crisis.
Misconceptionby Sarah DingleThe Sydney Morning HeraldAugust 16th, 2014The discovery in her late 20s that she was conceived using a sperm donor was a huge shock to Sarah Dingle. But learning there was no possibility of finding out the name of her biological father was even more disturbing.
Should We Open the Door to Genetically Modified Babies?by Jessica CussinsCNBCAugust 11th, 2014There has been a lot of confusion around this controversial issue, but as we are now facing a historic crossroads, it is important to set the record straight.
Tuskegee Todayby Jessica CussinsThe Huffington PostAugust 8th, 2014Last week marked the 42nd anniversary of the Tuskegee syphilis study and many people took the opportunity to examine its relevance to the treatment of human research subjects today.
Will my Disabled Daughter have a Place in this Genetic Wonderland?by Ian BirrellThe GuardianAugust 7th, 2014Until society gets to grips with prejudice we cannot start to grapple with the profound questions that medical advances raise.
Tuskegee, Todayby Jessica CussinsBiopolitical TimesAugust 7th, 2014Last week marked the 42nd anniversary of the Tuskegee syphilis study and many people took the opportunity to examine its relevance to the treatment of human research subjects today.
North Carolina and Genetics: From Sterilization to Research Subjectsby Victoria Massie, Biopolitical Times guest contributorAugust 7th, 2014In the twentieth century, North Carolina was one of dozens of states that targeted certain citizens for eugenic sterilization. Today, in a town outside Charlotte, biotech researchers are asking for urine and blood samples and offering $10 gift cards to WalMart in exchange.
California Set to Prohibit Sterilization of Prisonersby Jonathan ChernoguzBiopolitical TimesJuly 24th, 2014With the unanimous approval of Senate Bill 1135 in Sacramento last month, the victims of recent unauthorized sterilizations in California prisons, and their advocates, seem likely to win this important victory.
Eugenic Policies of the Past Teach Sobering Lessonsby Calum MacKellarThe ScotsmanJuly 24th, 2014The support of Scottish thinkers for eugenics is revealed in a new book entitled The Ethics of the New Eugenics.
Making Sense of the BRAINby Jessica CussinsBiopolitical TimesJuly 24th, 2014As criticisms of the brain projects on both sides of the Atlantic ramp up, what lessons can be learned from the successes and failures of the Human Genome Project?
A Whisper Past: Childless after Eugenic Sterilization in Albertaby Moyra LangLiving Archives on Eugenics BlogJuly 21st, 2014Leilani Muir, eugenic survivor, has written her biography and launched it at the Alberta Gallery of Art.
Closing the Information Gap on International Surrogacy[Quotes CGS's Marcy Darnovsky]by Elayne CliftWomen's Media CenterJuly 16th, 2014The Center for Genetics and Society and Our Bodies Ourselves are teaming up to shed light on the human rights aspects of cross-border surrogacy.
Should We Design Our Babies? [VIDEO] [With CGS's Marcy Darnovsky]The Aspen InstituteJuly 2nd, 2014At the Aspen Ideas Festival, Marcy Darnovsky and Nita A. Farahany discuss the possibility and implications of "designer babies."
Deadline Looms for NC Eugenics Victims Paymentsby Jerome Batley jrAssociated PressJune 26th, 2014North Carolina is the first of 33 states that ran forced sterilization programs to compensate victims. 520 people have come forward.
Eugenics Reparations Removed from Budgetby Joyce LiptrapLetter to the Editor, News LeaderJune 25th, 2014Virginia House Bill 1529: Justice for The Victims of Sterilization would have created a fund for reparations to Virginia residents physically mutilated at the hand of state funded institutions.
'Shoebox IVF' Hope for Infertile Couplesby Cathy EdwardsBBCJune 21st, 2014Infertility has been neglected in developing countries, partly because of a focus on controlling overpopulation. But experts argue that true reproductive health has to address both sides.
Female Prison Inmates Sterilized Illegally, California Audit Confirms by Corey G. JohnsonCFIRJune 19th, 2014The California state auditor blasted federal and state oversight of sterilization surgeries for female prison inmates, finding numerous illegal surgeries and violations of the state’s informed-consent law.
Vasectomies Should Not Be Used as Punishmentby Amanda MarcotteSlateJune 18th, 201420 months in prison, five years of probation, and a vasectomy. As part of his plea deal, Jesse Lee Herald had to agree to get snipped when he got out of jail.
Children of Surrogacy Campaign to Outlaw the Practiceby  Jane RidleyNew York PostJune 16th, 2014"You can’t sell your kidney for profit but you can purchase an egg or sell a child. There needs to be more checks and balances."
Who Owns Your Genetic Data? Hint: It's Probably Not Youby Meredith SalisburyThe Huffington PostJune 12th, 2014It seems intuitive to many of us that each person owns his or her genetic data and therefore should control access. But the reality is more complex.
Should Research Subjects Be Given Their Genetic Test Results?by Margaret LutzeGuardian Liberty VoiceJune 12th, 2014Two study groups agree that the answer turns on whether or not the research subject consented to the return of their genetic information.
Eugenicists Never Retreat, They Just Regroup: Sterilization and Reproductive Oppression in Prisonsby Loretta RossRH Reality CheckJune 12th, 2014Women in California prisons have been illegally sterilized, nearly four decades after sterilization abuse guidelines were implemented at the state and the federal level.
Searching Chromosomes for the Legacy of Traumaby Josie Glausiusz NatureJune 11th, 2014The daughter of a Holocaust survivor narrates her own participation in a study of epigenetic inheritance.
A Problem Like No Other: Science And Politicsby Adam FrankNPR BlogJune 10th, 2014Ignoring what scientists are telling us is an ultimately self-destructive act. But when it comes to telling us what we should do, scientists are not in a privileged position.
A Medical Student’s Call for Action Against Research Misconductby Eden AlmasudeThe Hastings CenterJune 3rd, 2014Is research misconduct and abuse the norm in the University of Minnesota’s Department of Psychiatry? A recent investigative report suggests that the answer may well be yes.
US Paediatrician Attacks Surrogacyby Michael CookBioEdgeMay 3rd, 2014A pediatrician at the Mayo Graduate School of Medicine has published a blistering rebuttal to the claim that on the whole, women in developing countries benefit from commercial surrogacy.
Preference for Sons Hurts Mothersby Gayle Tzemach LemmonCouncil on Foreign RelationsMay 1st, 2014A recent paper released by the World Bank suggests that son preference could be doing more than skewing sex ratios in India: It may be partly responsible for driving high mortality rates seen among mothers in India whose first child is a girl.
Human Rights Body Warns Over Mass DNA Screeningby Elaine EdwardsThe Irish TimesApril 11th, 2014A Government proposal which would allow the taking of DNA samples for “mass screening” of certain “classes” of individuals should be prohibited, Ireland's national human rights watchdog has said.
Forced Sterilization Nurse: ‘I Can See Now It Was So Wrong’by Lori Jane GlihaAlJazeera AmericaMarch 24th, 2014A nurse at the government-run 'State Colony for Epileptics and Feebleminded' and witnessed what may have been thousands of forced sterilizations - part of a government effort to rid society of the “defective,” and create a super race.
Sterilization Survivors Can't Fully Escape Eugenics Eraby Calvin TriceNews LeaderMarch 23rd, 2014Some three dozen states had eugenics laws, and Virginia has been among those who have for decades resisted any attempts at compensating victims who are still alive.
What We Know About Three-Parent In Vitro Fertilizationby Jessica CussinsRH Reality CheckMarch 13th, 2014The creation of genetically manipulated babies would be a huge and dangerous step. So, what's the evidence about efficacy and safety, and what are the available alternatives?
When Science Doesn't Have all the Answersby Louise KinrossBloomMarch 6th, 2014My son’s rare genetic deletion is on the list of disorders identified by microarray analysis of a fetus’s DNA. It makes me sad to think that the lives of children like my son are being targeted for termination. Is this a step forward?
To Understand Science, Study Historyby Alejandra DubcovskyThe Chronicle of Higher EducationFebruary 24th, 2014Teaching history to students who plan to be doctors, scientists, or engineers forces them to lift their heads beyond the lab bench or the clipboard. It gives them a sensitivity that only the humanities can teach.
Old Songs, New Tests, and Expensive Childrenby George Estreich, Biopolitical Times guest contributorFebruary 20th, 2014The CEO of AOL justified a restructuring of the company’s 401(K) plan by citing two "distressed babies." This tone-deaf insensitivity was answered by a disapproving choir, but it sadly resembles too many descriptions of the "cost" of people with disabilities.
What are the Best Interests of the Child in International Surrogacy?by Professor Eric Blyth, Dr Marilyn Crawshaw and Professor Olga van den AkkerBioNewsFebruary 17th, 2014As the surrogacy industry grows, so too do calls for a loosening of international and domestic restraints. A consequence of this is the potential marginalization of the best interests of children.
Calif. Prison Doctor Linked to Sterilizations no Stranger to Controversyby Corey G. JohnsonThe Center for Investigative ReportingFebruary 13th, 2014A prison doctor investigated by the California medical board after ordering tubal ligations without state approval is responsible for hundreds of other inmate sterilizations.
CGS Letter to the FDA on Mitochondrial TransferThe Center for Genetics and Society's letter regarding the FDA's February 25-26 public meeting to discuss the advisability of a technique that would modify the human germline.
Should Persons Affected by Mitochondrial Disorders Not be Brought Into Existence?by Professor Calum MacKellarBioNewsJanuary 6th, 2014What is being proposed is not a form of therapy in which a person is being treated or cured for a disorder. Instead, it is making sure that certain persons are not brought into existence.
A Short History of Biological Explanations for Povertyby Jessica CussinsBiopolitical TimesJanuary 2nd, 2014“The Biological Inferiority of the Undeserving Poor” sketches the history of biological explanations for social ills, and warns that we should pay close attention to their current resurgence.
The Three-Parent Dilemma by Enola AirdMomsRisingDecember 17th, 2013The United Kingdom is on the verge of permitting scientists to move forward with a procedure that would alter the human germline. Mothers everywhere should be deeply concerned.
Court to Consider California's DNA Collection Lawby Paul EliasAssociated PressDecember 9th, 2013California's Attorney General and the Obama administration are urging a federal appeals court to uphold California's mandatory collection of DNA samples from every arrestee.
Are Three Parents One Too Many?[Quotes CGS]by Stephen L. CarterBloombergNovember 27th, 2013The U.K. may soon approve a regulatory proposal that would allow scientists to create a human embryo using the DNA of three individuals. What’s striking is how the many opponents span the political spectrum.
Adrienne Asch, Bioethicist and Pioneer in Disability Studies, Dies at 67by Margalit FoxThe New York TimesNovember 23rd, 2013Adrienne Asch, an internationally known bioethicist who opposed the use of prenatal testing and abortion to select children free of disabilities, died on Nov. 19 at her home in Manhattan.
In Defence of Privacyby Dr Stuart HogarthBioNewsNovember 18th, 2013Not everyone is convinced that the public disclosure policy of the Personal Genome Project is the best response to the difficulties of safeguarding genomic confidentiality.
Belgian Justice Official Demands Universal Police DNA Databaseby Bruno WaterfieldTelegraphNovember 17th, 2013A senior justice official wants DNA samples "from every baby" and "everyone that enters the country." The privacy commissioner said the proposal is reminiscent of dystopian novels about totalitarianism.
INVESTIGATORS: Side-Effects of Drug Study?by Shelby CapacioFox 9November 17th, 2013A renewed push is underway for an investigation into a horrific death caused by possible research misconduct at the University of Minnesota.
How Big a Deal Are the Changes to China’s One-Child Policy?by Joshua KeatingSlateNovember 15th, 2013The notorious one-child policy has been criticized for leading to a rise in sex-selective abortion.
International Surrogacy Laws are not Keeping upby Kingsley Napley, Claire Wood and Katie NewburyLexologyNovember 14th, 2013There is currently no worldwide regulation of surrogacy. Unfortunately, therefore, the potential for exploitation is high.
How Do Eugenics Victims Find Justice? by Belle BoggsIndy WeekNovember 9th, 2013This year, the North Carolina Legislature approved monetary compensation for the state's eugenics victims. Is that enough?
A Conception Conundrum[Quotes CGS's Diane Tober]by Jennifer BleyerPsychology TodayNovember 4th, 2013Many donor-conceived children voice "genetic bewilderment" about their origins. Can the trend towards open-identity donation address these existential concerns?
Disability Studies: A New Normalby Cecilia Capuzzi SimonThe New York TimesNovember 1st, 2013Like black studies, women’s studies and other liberation-movement disciplines, disability studies teaches that it is an unaccepting society that needs normalizing, not the minority group.
GPs Told They Must Warn Patients Against Having Sex-Selective Abortions by Daniel MartinThe Daily MailOctober 24th, 2013The UK's Chief Medical Officer will write to all family doctors to make it plain that abortions carried out solely on the grounds of the sex of the child are wrong.
A Former IVF Baby on "Three-Parent IVF"by Jessica CussinsHuffington PostOctober 24th, 2013Mitochondrial replacement raises one of the thorniest questions humanity will ever face: are we willing to genetically modify future generations of humans?
1.7m DNA Profiles Cut From DatabasePress AssociationOctober 24th, 2013As part of the UK's commitment to slim down the amount of information held by the state, millions of DNA profiles and fingerprint records from innocent people have been deleted.
NIH Requests Comment on Genomic Data Sharing Policy Draftby Nicolle StrandThe Blog of the Presidential Commission for the Study of Bioethical IssuesOctober 23rd, 2013The National Institutes of Health published a draft version of its new genomic data sharing policy, along with a request for public comment.
The Genomic Oracleby Carl ZimmerSlateOctober 21st, 2013If your DNA is sequenced at birth, how would if affect your life? A new project aims to find out.
Access to Sperm Donor Data by Children Backedby Kirsty NeedhamThe Sydney Morning HeraldOctober 20th, 2013Alarmed by evidence that fertility clinics have deliberately destroyed the records of children conceived before anonymous sperm donation was made illegal, an inquiry calls for it be made an offence.
Decades Later, Condemnation for a Skid Row Cancer Studyby Gina KolataThe New York TimesOctober 17th, 2013A Columbia University medical researcher offered skid row alcoholics a clean bed and three square meals for a few days, plus free medical care and treatment if they had prostate cancer - if they agreed to surgical biopsies of their prostates.
Reproductive Rights and Responsibilities[Quotes CGS's Marcy Darnovsky]by Mirah RibenDissident VoiceOctober 17th, 2013Medical science and reproductive technologies are imploring us to consider if our genetic material is ours – solely – once it has been shared through natural reproduction or in a laboratory resulting in another life.
Savulescu Warns that “Love-Diminishing” Drugs could be Used for Gay “Conversion Therapy”by Xavier SymonsBioEdgeOctober 12th, 2013A controversial new paper examines the ethics of using drugs to “normalize” people with atypical sexual desires.
Girls Not Allowedby Vanessa BairdNew InternationalistOctober 4th, 2013Honest regulation of sex selection, however tricky to enforce, is necessary because individual acts are having extremely harmful collective consequences.
Feds Looks at Plan to Collect DNA from Suspects upon Arrest by Kim MackraelThe Globe and MailOctober 2nd, 2013Canada is considering a move to collect DNA samples from suspects upon arrest for certain crimes, raising concerns for criminal defence lawyers and civil-rights advocates.
Foreigners Are Flocking To India To Rent Wombs And Grow Surrogate Babies by Nita Bhalla and Mansi ThapliyalReutersSeptember 30th, 2013A debate over whether the unregulated surrogacy industry in India exploits poor women prompted a draft law that could make it tougher for foreigners seeking babies made in India.
Outsourcing a Life[Quotes CGS's Marcy Darnovsky]by Stephanie M. LeeSan Francisco ChronicleSeptember 30th, 2013The Akanksha Infertility Clinic in Anand, India allowed a San Francisco Chronicle reporter and photographer full access to its facilities, except for the delivery room.
Blinded By Science[Mentions CGS's Jessica Cussins]Center for Environmental HealthSeptember 30th, 2013Three stories of science gone wrong: distorted science, unethical science, and just plain nutty science. We learn about geoengineering, flame retardant chemicals, and the controversy over misuse of Havasupai DNA.
Your Body, Their Propertyby Osagie K. ObasogieBoston ReviewSeptember 30th, 2013When the U.S. Supreme Court struck down human gene patents it took one aspect of the debate over property interests in human biological materials off the table. But other body parts are still considered fair game.
On Designer Babiesby Sheldon KrimskyTufts Medicine, Summer 2013It is unimaginable that any humane society would permit a human trial of genetic modification where the potential risks so outweigh the social benefits.
More DNA Samples, More Debateby Erica E. PhillipsThe Wall Street JournalSeptember 23rd, 2013In Orange County, California, officials are taking DNA samples from people charged with minor offenses such as shoplifting and drug possession, in exchange for agreeing to dismiss the charges or as part of plea deals.
Welsh Police Take DNA Samples from more than 5,500 Children by James McCarthyWales OnlineSeptember 22nd, 2013A 12-month-old baby is among the thousands who were swabbed by Wales’ four forces as part of their investigations since 2010.
Calif. Seeks Answers On Questionable Prison Sterilizationsby Pauline BartoloneNPRSeptember 20th, 2013Lawmakers in California have called for an internal audit after an investigation revealed that women were receiving sterilization procedures improperly at several state prisons.
CGS Letter to the President of the Parliamentary Assembly of the Council of EuropeSeptember 20th, 2013Regarding the UK's possible approval of "mitochondria replacement," techniques that constitute human inheritable genetic modification.
Maryland v. King: Three Concerns about Policing and Genetic Informationby Elizabeth E. JohGenomics Law ReportSeptember 19th, 2013The decision in Maryland v. King affirmed that DNA databanking in the criminal justice system is here to stay, but the majority opinion raises at least three potentially troubling concerns about policing and genetic privacy.
FDA to Hold First Public Hearing on GM Babies[Quotes CGS's Richard Hayes and Jessica Cussins]by Rady AnandaActivist PostSeptember 16th, 2013Next month, the US Food and Drug Administration will hold a two-day public meeting to discuss genetic modification within the human egg, changes which will be passed on generationally.
Don’t Use India’s Missing Girls to Deny Women Reproductive Rightsby Mallika DuttRH Reality CheckSeptember 16th, 2013The attention to son preference by the U.S. Foreign Relations Committee should be cause for celebration, but the people shaking their fists the hardest about the issue are actually those who are most hostile to women’s rights.
"Me medicine" could undermine public health measuresby Donna DickensonNew ScientistSeptember 16th, 2013The growth of personalised medicine threatens the communal approach that has brought our biggest health gains.
Ethical Minefield of Parents in Controlby Neil McMahonThe Sydney Morning HeraldSeptember 14th, 2013Designer babies - their gender, personality traits and skin color chosen by genetic testing - are a looming reality. But are we ready to confront this minefield of ethics?
FDA to Hold Public Meeting about a Form of Human Germline Modificationby Jessica CussinsBiopolitical TimesSeptember 12th, 2013Next month, for the first time in its history, the FDA will hold a public meeting about techniques that would result in human germline modification. Do you want a say?
Republican Lawmakers Criticize Indian Government for Failing to Stop Sex-Selective Abortionsby Matthew PenningtonAssociated PressSeptember 10th, 2013A Congressional panel convened by a staunch opponent of abortion rights heard conflicting testimony about how to address sex selection in India.
David Langwallner: DNA Database is Welcome but it Will Need Safeguardsby David LangwallnerIndependent.ieSeptember 9th, 2013The Irish Innocence Project welcomes the new Irish DNA database bill, but the retention of DNA from non-convicted persons raises genuine concern as to the length of time such material can be retained.
The Right to Genetic Ignoranceby EditorialNew ScientistSeptember 6th, 2013People should be free to choose whether to be informed about risk factors in their genomes, or those of their children.
Organ Trafficking: A Protected Crime by Nancy Scheper-HughesThe ConversationSeptember 3rd, 2013Organ trafficking and illicit transplant surgeries have infiltrated global medical practice. Despite the evidence of widespread criminal networks, it is still not treated with the seriousness it demands.
Questions in India Cancer Study Still Lingeringby Bob OrtegaThe RepublicAugust 31st, 2013A decade-long study of cervical cancer screening in the slums of Mumbai is under investigation because researchers put half the women in a “control” group that was not screened.
Differences on Display on US Informed Consent Rulesby Meredith WadmanNatureAugust 28th, 2013At an unusual public meeting, senior health officials grappled with the firestorm over the problematic consent forms in an NIH-funded clinical trial o more than 1000 premature infants.
Havasupai, HeLa, and the Fallacy of Neutral Scienceby Jessica CussinsBiopolitical TimesAugust 28th, 2013A recent claim that misuse of Havasupai DNA was a “fairy tale” has stirred up heated debates about informed consent and scientific ethics.
More Concerns Over Familial DNA Searchingby Osagie K. ObasogieBiopolitical TimesAugust 28th, 2013A recent paper by Rori Rohlfs et. al., and two accompanying videos, suggest that real concerns still remain with familial searching in California's DNA databases.
Involuntary Sterilization Then and Nowby Jessica CussinsBiopolitical TimesAugust 28th, 2013North Carolina will be the first US state to offer compensation to victims of state-sponsored forced sterilization programs. The decision marks a milestone in the long struggle for recognition of this tragic history, but what about the questionable sterilizations still taking place today?
Righting a Wrong: NC to Pay Victims of Forced Sterilizationby Kimberly JohnsonAljazeera AmericaAugust 23rd, 2013Many states had eugenics programs; North Carolina will be the first to provide financial compensation.
Is Individuality the Savior of Eugenics?by Nathaniel ComfortScientific AmericanAugust 23rd, 2013Once defined as “the science of human improvement through better breeding,” eugenics has roared back into the headlines in recent weeks in both Mr. Hyde and Dr. Jekyll personae.
California Legislators Urge Speedy Inquiry into Prison Sterilizationsby Corey G. JohnsonCenter for Investigative ReportingAugust 21st, 2013Legislators today fast-tracked an audit into why doctors under contract with the state sterilized nearly 150 female prison inmates from 2006 to 2010 without the required authorizations.
Subject to Questionby EditorialNatureAugust 21st, 2013A fresh question has come to the fore: how best to protect human subjects in trials that examine the effectiveness of existing therapies that are already in widespread use.
As Prenatal Testing For Down Syndrome Increases, So Do Concerns About Counselingby Katherine BindleyHuffington PostAugust 20th, 2013As noninvasive tests become the new norm in prenatal care, medical professionals and genetic counselors hope that women will get the guidance they need.
Rich Nations not Collaborating in Genomics for Public Health, Says OECD by Lynne TaylorPharmaTimesAugust 19th, 2013New reports show that the development of genomics for public health is being prioritised mainly by low and middle income nations, with richer countries not seeking to collaborate in such research.
The Empire Strikes Backby Jonathan MarksAnthropomicsAugust 19th, 2013New claims about the geneticist who collected samples from Native Americans to study diabetes, and then piggybacked research on schizophrenia without consent, compels us to revisit the case.
Study Probes DNA Search Method that Led to 'Grim Sleeper' Suspectby Eryn BrownLos Angeles TimesAugust 15th, 2013DNA-based familial searches may mistakenly identify individuals in a forensic database as siblings or parents of an unknown perpetrator, when in fact they are distant relatives.
North Carolina’s Bold Model for Eugenics Compensationby Peter Hardin and Paul LombardoRichmond Times-DispatchAugust 11th, 2013In a landmark action, North Carolina legislators have voted to spend $10 million to compensate men and women sterilized under the state’s 20th century eugenics program.
Deal Done Over HeLa Cell Lineby Ewen CallawayNatureAugust 7th, 2013Over the past four months, the director of the US National Institutes of Health met with Henrietta Lacks's family members to discuss what should be done with genome data from the HeLa cells.
Is Eugenics Ever Okay?by Nathaniel ComfortGenotopiaJuly 26th, 2013Recognizing that we are grasping the reins of human evolution as fast as we can raises two sets of concerns. First, “What if it doesn’t work?” Second, "What if it does?"
A Few Notes on the Invisibleby George Estreich, Biopolitical Times guest contributorJuly 23rd, 2013Thoughts about disability, invisibility, Ethan Saylor's death at the hands of private police, and news that the extra chromosome that causes Down syndrome may one day be “silenced.”
Payouts to NC Eugenics Victims Could be Modestby Michael BieseckerAssociated PressJuly 22nd, 2013State lawmakers have agreed to compensate victims of a eugenics program that for decades forced people who social workers said were developmentally disabled to undergo sterilization.
Pitts: Gruesome Bad Old Days of Eugenics Haven't Left Usby Leonard PittsThe ColumbianJuly 15th, 2013We have traveled far, only to wind up in this familiar place where the vulnerable and voiceless, the ones most deserving of our compassion, are regarded instead as inferiors and allowed to be victimized.
'Designer Babies': The Ultimate Privileged Elite?by Heather LongGuardianJuly 9th, 2013A US baby born via IVF and genetically screened could open the door to wealthy parents selecting for ideal traits in their kids.
Legislature Can Still Do Eugenics CompensationCharlotte ObserverJuly 8th, 2013The North Carolina legislature can still include money in this year’s budget to compensate victims of the state’s disgraceful and long-running eugenics program.
Female Inmates Sterilized in California Prisons Without Approvalby Corey G. JohnsonCenter for Investigative ReportingJuly 7th, 2013The Center for Investigative Reporting has found that California doctors sterilized nearly 150 female inmates from 2006 to 2010 without required state approvals.
The Rise of a New Eugenicsby Lloyd Lewis and Julie ReiskinDenver PostJuly 4th, 2013Non-invasive prenatal testing technology is dangerously ahead of society's understanding of people who have Down syndrome.
Center for Genetics and Society - Marcy Darnovsky on Initiative Radio with Angela McKenzie[With CGS's Marcy Darnovsky]by Angela McKenzieInitiative RadioJune 30th, 2013Marcy Darnovsky talks about the work to encourage responsible uses and effective governance of the new human genetic and reproductive technologies.
Public Interest Group Urges UK Government Not to Break International Consensus Against Inheritable Genetic Modification[Press statement]June 27th, 2013That the UK may move toward permitting mitochondrial replacement is particularly disturbing when the safety is very much in doubt, when its usefulness is dubious, and when the claim of public support is highly misleading at best.
From Suspects to the Spitterati: A collision of power, profit, and privacyby Jessica CussinsBiopolitical TimesJune 27th, 2013DNA collection is increasingly ubiquitous, and the push for access to genetic information is gaining momentum. What questions should we be considering?
Sterilized Transsexuals Sue Swedish governmentby Ann TörnkvistThe LocalJune 24th, 2013Swedish transsexuals who had to accept sterilization to change gender legally are demanding compensation from the government.
Pioneering Icelandic Genetics Company Denied Approval for Data-Mining Planby Jocelyn KaiserScienceJune 20th, 2013A national agency that oversees data privacy in Iceland has rejected a request from deCODE to allow it to estimate the genotypes of 280,000 Icelanders who have never agreed to take part in the company's research.
Inside the Stem Cell Shell Gameby Gina Maranto, Biopolitical Times guest contributorJune 18th, 2013Sociologist Ruha Benjamin examines the California stem cell initiative from a social justice perspective.
Welcome to the “Genetic Panopticon”by Jessica CussinsBiopolitical TimesJune 5th, 2013In a forceful blow to the Fourth Amendment, the Supreme Court ruled Monday that police can collect DNA from people who have been arrested – but who have not been convicted, and may never be.
Justices Allow DNA Collection After an Arrestby Adam LiptakThe New York TimesJune 3rd, 2013The Supreme Court ruled that the police may take DNA samples from people arrested in connection with serious crimes, prior to conviction.
Supreme Court Won't Hear Case of B.C. Woman Seeking Info About Sperm-Donor Dad by The Canadian PressThe Vancouver SunMay 30th, 2013The Supreme Court of Canada will not hear an appeal from a woman who argued that offspring should have access to information about their biological past.
California Bill Would Prevent Genetic-Testing Firms from Using Surreptitiously Obtained DNAby Jessica ShugartMercury NewsMay 23rd, 2013Under current California law, genetic testing companies can reveal your most intimate biological secrets to anybody, without your knowledge or permission. A new bill may change that.
Branstad Signs Bill Widening DNA Sampling to Misdemeanor CasesAssociated PressMay 16th, 2013People convicted of certain aggravated misdemeanors in Iowa now will be required to submit DNA samples to the federal DNA database.
Dad Aims to Change Views of Down Syndrome in New Bookby Jessica Ryen DoyleFox NewsMay 11th, 2013George Estreich's new book, The Shape of the Eye, aims to change the negative connotations associated with Down syndrome.
A Petition for Change in Memory of Dan Markingsonby Emily Smith BeitiksBiopolitical TimesMay 8th, 2013The story of a young man’s premature death illustrates the medical-industrial complex at its worst.
Made-to-Order Embryos: You Want to Sell What?!by Jessica CussinsBiopolitical TimesMay 2nd, 2013The fact that a fertility clinic can own and sell made-to-order embryos for profit raises novel concerns that should not be collapsed into predefined frameworks used to assess other assisted reproductive technologies.
Your Genetic Make Up to be Stored, Without Consent, for Profit TechEyeApril 25th, 2013Genetic data is massively revealing. It can be used to identify relatives, and to assess the potential for passing recessive genetic disorders on to children.
Shame and Guilt in Minnesota by Carl ElliottBioethics ForumApril 24th, 2013A petition asking the governor to investigate a research scandal at the University of Minnesota has been steadily gathering momentum.
The Baby Blueprint [VIDEO][With CGS's Marcy Darnovsky]Al Jazeera EnglishApril 22nd, 2013Would you choose your child's genetic potential? Live debate with Marcy Darnovsky, Stuart Newman, Julian Savulescu, and Nita Farahany.
That “Pernicious” Notion of the “Best Interests of the Child”by Michael CookBioEdgeApril 20th, 2013A Harvard Law School bioethicist argues that “the best interests of the child” is not a concept which is applicable to assisted reproductive technology.
As iPS Cell Studies in Humans Approach, Accessible Relevant Pre-Clinical Data Remains Minimalby Paul KnoepflerKnoepfler Lab Stem Cell BlogApril 19th, 2013We all want to get stem cell-based medicines to patients who need them as soon as possible, but there is such a thing as moving too quickly.
Surrogacy flourishes despite crackdownby Zhang WenGlobal TimesApril 7th, 2013Beijing officials shut down an illegal - and lucrative - surrogacy agency in Beijing last month, but the practice continues.
Shifts in the Global Body Market: Access or Exploitation?by Jessica CussinsBiopolitical TimesApril 1st, 2013PlanetHospital claims that new surrogacy regulations in India have ruined a “golden opportunity” and paints Mexico and Thailand as the surrogacy frontiers – where it happens to have business arrangements.
Sex-Selective Discrimination Common in Indian Wombs: US StudyHindustan TimesMarch 31st, 2013Indian women carrying male foetuses are likelier to receive pre-natal medical care than their counterparts pregnant with girls, a new research by American scientists suggests.
Sperm Donor with Genetic Illness Speaks Outby PSThe Copenhagen PostMarch 25th, 2013A former sperm donor may have passed on a heritable and treatable cancer-causing illness, but health authorities have decided not to search for the five to ten children who may be affected.
Online Petition Seeks Justice on Behalf of Dan Markingsonby Emily Smith BeitiksBiopolitcal TimesMarch 25th, 2013Dan Markingson's binding enrollment in a clinical drug trial led him to commit suicide just six months in; a close friend has initiated a petition asking the Minnesota governor to investigate.
The Immortal Life of Henrietta Lacks, the Sequelby Rebecca SklootThe New York TimesMarch 23rd, 2013Last week, scientists sequenced and published the genome of cells taken without consent from a woman named Henrietta Lacks - without her family's permission.
Fixing Psychiatric Research At A University[Op-Ed]by Ed SilvermanPharmalotMarch 20th, 2013University of Minnesota bioethicist Carl Elliott has explored a controversial episode over a clinical trial and a suicide at his own university over the past few years; he explains why now is the time to get involved.
A Rally Against Human Gene Patents on the Supreme Court’s Stepsby Marcy DarnovskyBiopolitical TimesMarch 19th, 2013Breast Cancer Action argues that when “a corporation controls human genes, corporate profits will always come before our health.”
Experiments with Inheritable Genetic Modificationby Jessica CussinsBiopolitical TimesMarch 13th, 2013A developmental biologist looks carefully at research on mitochondria replacement that would be an experimental form of human inheritable genetic modification.
Meet the New Eugenics, Same as the Old Eugenicsby Gina Maranto, Biopolitical Times guest contributorBiopolitical TimesMarch 4th, 2013According to a new wave of eugenic advocacy, “we” have a “moral obligation” to enhance future generations.
The Throwawaysby Sara MojtehedzadehGuernicaMarch 1st, 2013In Kenya, doctors are force-sterilizing HIV-positive women—in some cases, without their knowledge.
Selling the Story: Down Syndrome, Fetal Gene Testing, and The Today Showby George Estreich, Biopolitical Times guest contributorBiopolitical TimesFebruary 28th, 2013On The Today Show, a couple learns the results of a noninvasive prenatal test. Left unanswered are questions about the effects of new technologies, and how those technologies are sold.
Can They Patent Your Genes?by Daniel J. KevlesThe New York Review of BooksFebruary 25th, 2013This spring, the Supreme Court will hear a case that may well decide whether genes can be patented, and the consequences for American biomedicine could be huge.
DNA and the Constitution[Editorial]The New York TimesFebruary 24th, 2013The substantial harm to innocent people that could result from the misuse of DNA greatly outweighs the benefits. And the safeguard against such harm is the Fourth Amendment, whose fundamental protections the Maryland court upheld. The Supreme Court should do likewise.
A Call for International Prohibition of Forced Genital-Normalizing Surgery and Sterilizationby Jessica CussinsBiopolitical TimesFebruary 21st, 2013A new report from the United Nations Special Rapporteur on Torture focuses on human rights abuses in health-care settings, and bolsters LGBTQI activists in their fight against involuntary sterilizations and genital-normalizing surgeries.
Parents of Down's Syndrome Woman, 21, Can NOT Have her Sterilised, Rules Judge by Daniel MillerDaily MailFebruary 16th, 2013In a landmark ruling in London, the sterilization of a woman with Down's syndrome at her parents' request was ruled 'disproportionate' and in violation of her human rights.
Exaggerations and Misrepresentations Have No Place in Science Policy Debatesby Jeremy GruberCouncil for Responsible GeneticsFebruary 15th, 2013A recent debate on whether we should prohibit genetically engineered babies wound up focusing on mitochondrial replacement techniques.
Yes, Virginia, Your Reproductive Rights Are Compromised by Alex SternHuffington PostFebruary 12th, 2013In Virginia as in many other states, legislative battles about reproductive rights are front and center. One pending bill proposes reparations for victims of the state's eugenic sterilization policy; the other seeks to end the 30-day waiting period for sterilization.
Too Much InformationSupreme Court 2013: Why collecting DNA from people who are arrested won’t help solve more crimes.by Brandon L. Garrett and Erin MurphySlateFebruary 12th, 2013Research shows that police solve more crimes not by taking DNA from suspects who have never been convicted, but by collecting more evidence at crime scenes.
Horror in a Mass Sterilization Camp: Unconscious Indian Women Were Dumped in a Field After Undergoing a Painful Sterilization Operation by Carol KuruvillaNew York Daily NewsFebruary 7th, 2013A sterilization drive at a rural hospital in West Bengal ended in scandal after four doctors rushed to sterilize 106 Indian women within a day and left them outside to recover.
Israel Admits Targeting Ethiopian Jews for Compulsory Contraception by Diane ToberBiopolitical TimesFebruary 7th, 2013Israeli government officials have admitted to coercing Ethiopian Jewish immigrant women into taking long-acting contraceptive injections.
Will Pre-Conviction DNA Collection Become the National Norm?by Jessica CussinsBiopolitical TimesFebruary 7th, 2013The United States Supreme Court will hear a case later this month that will determine the legality of collecting DNA from people who are arrested for but not convicted of any crime.
Promoting the Civil Rights of Children Born With Variations of Sex AnatomyAdvocates for Informed ChoiceFebruary 6th, 2013The UN Special Rapporteur on Torture calls upon all States to repeal any law allowing intrusive and irreversible treatments, including forced genital-normalizing surgery, involuntary sterilization, and unethical experimentation.
Supreme Court to Hear Fight Over Taking DNA From Arrested Peopleby David SavageLos Angeles TimesFebruary 2nd, 2013The Supreme Court will hear a privacy rights challenge to the police practice of taking DNA from people arrested but not convicted.
High School Students' Campaign to Spread Awareness of California’s Eugenic Historyby Jessica CussinsBiopolitical TimesFebruary 1st, 2013A group of California high school students have started a petition asking that textbook standards and curricula be changed to include the state’s history of sterilization and eugenics.
Proposal to Collect DNA From Immigrants Too Orwellian: Opinion by Opinion staffDaily NewsJanuary 31st, 2013Undocumented immigrants should not be required to submit DNA samples as a condition of staying in the United States.
State Lawmaker Wants To Take All Misdemeanor Offenders’ DNACBS DenverJanuary 30th, 2013Colorado already collects DNA from the worst felons. Now there’s a proposal to follow in New York's footsteps and add the DNA of people convicted of misdemeanors.
Neanderthal Clone Poll Finds Most Americans Oppose Cloning Human Relative by Emily SwansonHuffington PostJanuary 30th, 2013Most Americans are opposed to allowing any scientist to attempt such a feat - with or without a human surrogate.
Hilary Rose: The Problem with the Bioscience Industry – Videoby Hilary RoseThe GuardianJanuary 30th, 2013Hilary Rose, co-author of Genes, Cells and Brains, argues that we should treat the medical claims made for genetic research with suspicion.
Transparency is the VictimThe HinduJanuary 27th, 2013In the absence of effective oversight of assisted reproduction practices, some medical institutions in Delhi are flouting medical and ethical rules with aplomb.
Israel Admits Ethiopian Women Were Given Birth Control Shots by Talila NesherHaaretzJanuary 27th, 2013The Health Ministry director general has instructed gynecologists not to inject women with the long-acting contraceptive Depo-Provera if they do not understand the ramifications of treatment.
A Small Sign of Virginia's Sins[Editorial]The Virginian-PilotJanuary 25th, 2013The General Assembly is considering a measure that would offer $50,000 to people once deemed by the state to be unfit to have children.
Neo Neanderthal[With CGS's Pete Shanks]by Alyona MinkovskiHuffPost LiveJanuary 25th, 2013A leading geneticist at Harvard Medical School says he can clone a Neanderthal and resurrect the extinct species. What are the ethical issues, risks and benefits?
Human Rights and Sweden’s Repeal of Required Sterilization for Transgender Peopleby Jessica CussinsBiopolitical TimesJanuary 23rd, 2013The Swedish law that required transgender people to undergo sterilization before they could be legally recognized as another gender has been recognized as a violation of human rights.
Gene-ism and Mass Murderby Marcy DarnovskyBiopolitical TimesJanuary 22nd, 2013Proposals to analyze the genes of a mass murderer have rightly drawn criticism from experts, including the editors of Nature.
Sickle Cell Test Gets NCAA OK Despite Docsby Cole PetrochkoMedPage TodayJanuary 21st, 2013The National Collegiate Athletic Association has approved mandatory confirmation of sickle cell trait status in Division III student athletes, despite the objections of the American Society of Hematology.
Is Egg Donation Dangerous?by Alison MotlukMaisonneuveJanuary 21st, 2013About five hundred egg donations take place in Canada every year, and experts say the process is very safe. But some donors face serious health problems—and doctors may be underestimating the risks.
Privacy Fear for DNA Dragnetby Tony WallStuff (New Zealand)January 20th, 2013A district court judge who is a world expert in forensic DNA has called for a public debate on the use of familial DNA testing, saying it raises serious privacy issues and has the potential to subject entire families to life-long genetic surveillance.
Wanted: Adventurous Surrogate to Gestate Neanderthal Baby [updated]by Pete ShanksBiopolitical TimesJanuary 19th, 2013George Church speculates about an "adventurous female human" willing to be impregnated with a synthetically constructed and genetically engineered Neanderthal-like clone.
Fetal Genome Screening Could Prove TragicScientific AmericanJanuary 18th, 2013Parents will soon be able to have their fetus' genes mapped. Without proper guidance, they might decide to end the pregnancy based on a misguided reading of the genetic tea leaves.
It's Legal For Some Insurers To Discriminate Based On Genesby David SchultzNPRJanuary 17th, 2013The Genetic Information Nondiscrimination Act has a loophole: It only applies to health insurance. It says nothing about life insurance, disability insurance or long-term-care insurance.
"Adventurous Female Human" Needed to Give Birth to NeandertalGenome WebJanuary 17th, 2013Harvard's George Church on recreating Neandertals, engineering humans to live to 120, making people resistant to viruses, and exchanging DNA with other species.
IVF on Steroids: The Dangerous Off-Label Use of 'Dex' During Pregnancyby Alice DregerThe AtlanticJanuary 16th, 2013Fertility clinics across the U.S. are prescribing a medication with a seriously concerning safety profile and no proven benefits.
Sweden Ends Forced Sterilisation of Sex Change PatientsMedical ExpressJanuary 10th, 2013Sweden will no longer require sex change patients to be sterilised, ruling that the practice is unconstitutional and in violation of the European Convention on Human Rights.
Your Medical Data in the Cloud? Not So Fast, Says HHS Privacy Officialby Andrea PetersonScience ProgressJanuary 9th, 2013Digital health records are superior to physical ones for many reasons, but data security and privacy of health information are major obstacles and policy has not yet caught up with practice.
More Female Fetuses Aborted in Europeby Claudia HennenDWJanuary 7th, 2013Sex selection is not just a problem confined to China and India: New statistics show skewed sex ratios in favor of boys in Albania, Kosovo and Montenegro.
Rape in India: A Result of Sex Selection? by Erika ChristakisTimeJanuary 4th, 2013Behind the angry protests over the horrific gang rape and murder of a 23-year-old medical student is an even deeper story: the preference for male babies in India and much of the world may be at the root of this senseless violence.
As a Girl in India, I Learned to Be Afraid of Menby Mira KamdarThe AtlanticJanuary 4th, 2013Sex-selective abortion, female infanticide and the sheer neglect of girls have made for a growing gender gap in India. In the wake of the brutal gang rape of a young paramedical student in Delhi, Indian citizens have taken to the streets to show their outrage.
Sperm Donor Offspring Call for Privacy Changesby Kyoko HasegawainSingJanuary 3rd, 2013Donor-conceived children in Japan, where there are no laws governing access to details of genetic parentage, are calling for the practice of anonymous sperm and egg donation to be banned.
Exclusive: Rise in Number of Couples Seeking 'Wombs for Hire' Abroad by Jeremy LauranceThe IndependentDecember 28th, 2012The number of British couples formally registering children born to foreign surrogates has nearly trebled in five years, raising concerns that poor women in developing countries are being exploited by rich Westerners.
HealthWatch: More Parents Deciding Sex Of Children [Video][With CGS's Marcy Darnovsky]by Kim MulvihillCBS San FranciscoDecember 28th, 2012More Bay Area parents are spending thousands of dollars to predetermine whether their child will be a boy or girl.
FDA Moves Closer to Approval of GMO Fish, Critics Outragedby Carey GillamReutersDecember 21st, 2012A controversial genetically engineered salmon has moved a step closer to the consumer's dining table after the U.S. Food and Drug Administration said the fish didn't appear likely to pose a threat.
Human Rights Court Orders Costa Rica to Legalize In Vitro Fertilizationby L. AriasTico TimesDecember 20th, 2012The Inter-American Court of Human Rights issued a ruling against the government of Costa Rica condemning its ban on in vitro fertilization.
German Federal Court Bans Mass Genetic TestingDeutsche WelleDecember 20th, 2012A German court has ruled that evidence from voluntary mass genetic testing cannot be used against participants' family members.
German Brüstle Decision Puts Spotlight on National Patent Guidelinesby Julian HitchcockBioNewsDecember 17th, 2012The German Federal High Court fully exploited a narrow sliver of discretion granted it by an EU ruling in order to allow a patent on Oliver Brüstle's precursor cells.
DeliriousMe: Ownership and Identity in An Age of Genomic Medicineby Patricia WilliamsLOG: Journal of Architecture and UrbanismDecember 17th, 2012The question of who owns our bodies — in particular the genomic information that may be culled from routine human shedding — is a matter of evolving legal, social and ethical importance.
Appeals Court Backs Scientist in Pfizer Retaliation Case by Lee HowardThe DayDecember 14th, 2012An appeals court has refused to overturn a verdict against Pfizer Inc. and in favor of whistleblower molecular biologist Becky McClain. Her efforts have drawn public attention to worker-safety issues in the biotechnology industry.
N.C. House will Consider Eugenics Payouts Againby Patrick GannonStar News OnlineDecember 13th, 2012The North Carolina House will again pursue legislation in 2013 to compensate residents sterilized decades ago by a state-sanctioned board.
A DNA Database in the NHS: The End of Privacy?by Helen WallacePublic Service EuropeDecember 12th, 2012Governments, police, journalists, employers, insurers and even nosy neighbours would inevitably get access to personal information about medical conditions and non-paternity if a DNA database is built in the National Health Service.
Non-Invasive Prenatal Testing: Is This the Brave New World We Want?by Alexandra Minna SternThe Huffington PostDecember 11th, 2012Several companies have recently unveiled non-invasive prenatal tests for use among "high-risk" women, but the history of prenatal testing in America suggests that a path to routinization is all but assured.
Plans for NHS Database of Patients' DNA Angers Privacy Campaignersby Jamie DowardThe Guardian (UK)December 8th, 2012"This Big Brother project will allow every individual and their relatives to be identified and tracked."
Welcome to DownTown Abbeyby Jane RidleyPage Six MagazineDecember 6th, 2012New York City's modern-day dukes and duchesses blur the lines between upstairs and downstairs, demanding their household help provide everything from donated eggs to properly behaved aquatic animals.
Drug Firms Bought East German Patients to Use as Human Guinea Pigs by Tony PatersonThe IndependentDecember 5th, 2012Communist East Germany allowed Western drug companies to use its medical patients as unwitting guinea pigs for tests with untried pharmaceuticals in return for hundreds of thousands in hard currency.
The Jury is Out on Nationwide DNA Databaseby Peter StannersThe Copenhagen PostDecember 1st, 2012Questions remain about whether a nationwide DNA database would help solve more crimes or simply be an ineffective drain on police resources.
Embryos for Sale: When You Want Them, How You Want Them, or Your Money Backby Jessica CussinsBiopolitical TimesNovember 28th, 2012A California fertility clinic is using “desirable” sperm and eggs to create batches of embryos that it then splits among multiple infertile couples.
Selecting Against Disease[Quotes CGS's Marcy Darnovsky]by Urmila RamakrishnanFin MagazineNovember 26th, 2012Although we may not have control over the end of the world, genetic counseling and selection will give us power to manipulate the quality and extent of individual lives.
The Million Veteran Program: Building VA’s Mega-Database for Genomic Medicineby Joel Kupersmith and Timothy O'LearyHealth AffairsNovember 19th, 2012A mega-database of genomic and clinical information about veterans that launched last year now includes 40 Department of Veterans Affairs' medical centers.
Tesla, Eugenics And Rationalizing Dehumanizationby Alex KnappForbesNovember 19th, 2012Famed inventor Nikola Tesla was an ardent supporter of eugenics, predicting universally established eugenics by the year 2100.
Anatomy of a Webpage, Part 3: Selling “Peace of Mind”by George Estreich, Biopolitical Times guest contributorNovember 13th, 2012New developments in prenatal tests are triggering aggressive - and often misleading - marketing. Thankfully, there are signs of push-back from a society that is learning that people are more than their syndromes.
British Academics Say Technological Enhancements to Employees Raise Ethical Questionsby Raphael SatterWashington PostNovember 7th, 2012Attention needs to be focused on the consequences of technology which may one day allow — or compel — humans to work better, longer and harder.
Opinion: Science in the Courtroomby James TaberyThe ScientistNovember 6th, 2012Should biological explanations for criminal behavior influence a judge’s or jury’s decision about how to handle a case? If so, how?
Inquiry Into Practice of Sterilising Disabled Womenby Tom NightingaleABC News (Australia)November 1st, 2012A Senate committee is looking into the controversial practice of sterilising disabled people, which is still legal in Australia.
Have India’s Poor Become Human Guinea Pigs?by Sue Lloyd-RobertsBBC NewsOctober 31st, 2012Drug companies are facing mounting pressure to investigate reports that new medicines are being tested on some of the poorest people in India without their knowledge.
Law Lags as Aussies Employ Overseas Surrogate Mums[radio transcript]by Damien CarrickABC (Australia) RadioNationalOctober 23rd, 2012Though surrogacy is illegal in Australia, a child is born in India to Australian parents every day. What are the legal and ethical dimensions of hiring a woman from another country as a surrogate?
Colman Chadam, California Boy, Ordered To Transfer Schools For Carrying Cystic Fibrosis Gene Huffington PostOctober 18th, 2012An 11-year-old has been ordered to leave his current school because of his genetic makeup. His parents are taking the issue to court.
Should We Screen Kids’ Brains and Genes To ID Future Criminals?by Gary MarchantSlateOctober 17th, 2012Intervention might help save troubled kids. But the label could doom them.
Anatomy of a Webpage, Part 2: Preconception Servicesby George Estreich, Biopolitical Times guest contributorOctober 17th, 2012People living with genetic diseases become medicalized abstractions of risk and defect in the slick marketing of fetal gene tests. More than a matter of semantics, such simplification has negative consequences for all.
Citing Privacy Concerns, U.S. Panel Urges End to Secret DNA Testingby Sharon BegleyReutersOctober 11th, 2012In response to companies that offer genome sequencing from such discarded items as cigarette butts, the President's bioethics commission stresses privacy concerns and suggests a ban on "surreptitious commercial testing."
Complete Video Now Online for Eugenics in California: A Legacy of the Past?by Center for Genetics and SocietyBiopolitical TimesSeptember 28th, 2012A video recording of a public event at Berkeley School of Law about the legacies of eugenics in California.
Indian Activist Urmi Basu: Sex Selection Fuels Human Traffickingby Viji SundaramNew America MediaSeptember 24th, 2012The practice of gender selection, grinding poverty among the people and the stifling caste system have contributed to making India the country with the largest number of human trafficking victims in the world today.
'Single Gene May Hold Key to Life Itself'by Nathaniel ComfortHuffington PostSeptember 23rd, 2012"Gene for..." headlines may be a symptom of, or catalyst for, Americans' infatuation with controlling life.
How To Buy a Daughter: Choosing the sex of your baby has become a multimillion-dollar industry[Quotes CGS's Marcy Darnovsky]by Jasmeet SidhuSlateSeptember 14th, 2012The US is one of the few countries that allows preimplantation genetic diagnosis for prenatal sex selection, which could have negative consequences for parents and children alike.
Science, Standards and Forensics: Part III by Brandon L. GarrettHuffington PostSeptember 9th, 2012If we are going to use forensics to put people in prison for years, Congress should pass legislation to make forensics far more of a science.
Where Is the Path Forward for Forensics? Part II by Brandon L. GarrettHuffington PostSeptember 7th, 2012Problems abound with DNA forensics and have led to numerous wrongful convictions, but so far, scientific recommendations have been ignored by Congress. What is the path forward?
Is Costa Rica Violating Human Rights by Banning In Vitro Fertilization?by Matt LevinTico TimesSeptember 7th, 2012Costa Rica is being sued at the Inter-American Commission on Human Rights for prohibiting in vitro fertilization.
Forensics on the Hill: Part I by Brandon L. GarrettHuffington PostSeptember 5th, 2012Donald Eugene Gates' fate was sealed by two stray hairs and he spent nearly three decades in prison, before his innocence was finally proven. How often is DNA forensics wrong?
South Carolina to Collect DNA After Every Felony Arrestby Seanna AdcoxAssociated PressSeptember 1st, 2012South Carolina’s law enforcement agency will soon collect DNA samples from people when they’re arrested for a felony – rather than post-conviction.
DNA Test Jailed Innocent Man for Murderby Hannah BarnesBBC NewsAugust 31st, 2012Scientists, lawyers and politicians have raised concerns over the quality of forensic evidence testing - is the criminal justice system too reliant on lab tests without seeing their limitations?
European Rights Court Raps Italy on Embryo Screeningby Gilbert ReilhacReutersAugust 28th, 2012The European Court of Human Rights ruled on Tuesday that Italy violated the rights of a couple carrying cystic fibrosis by preventing them from screening in vitro fertilization embryos.
Forensic Test Can Predict Hair and Eye Colour From DNAby Paul RinconBBC NewsAugust 24th, 2012Scientists have developed a forensic test that can predict both the hair and eye colour of a possible suspect using DNA left at a crime scene.
Vt. High Court to Weigh Pre-Conviction DNA Testingby Dave GramThe Boston GlobeAugust 20th, 2012The Vermont Supreme Court has been asked to rule on the constitutionality of a 2009 law allowing the state to take DNA samples from people charged with but not yet convicted of crimes.
Stop and Swab: Dramatic Increases in DNA Police Databasesby Jessica CussinsBiopolitical TimesAugust 20th, 2012DNA databases continue to grow exponentially as more U.S. states allow police to seize DNA samples from people who have been arrested but not convicted, and from those suspected of misdemeanors as well as felonies.
Eugenics in California: A Legacy of the Past?by Center for Genetics and SocietyBiopolitical TimesAugust 15th, 2012A free public event at UC Berkeley will consider the long history of eugenics in California and explore continuities and discontinuities in the uses and misuses of genetic ideas and practices.
Virginia Lawmaker Proposes Symbolic Reparations for Victims of Eugenic Sterilizationby Jessica CussinsBiopolitical TimesAugust 9th, 2012To mark the 85th anniversary of the US Supreme Court’s ruling that state governments can forcibly sterilize “inferior” members of society, Virginia lawmaker Patrick A. Hope calls for “a symbolic payment” to living victims.
On Anniversary of Eugenics Ruling, a Va. Delegate Proposes Payments for Living Victimsby Bob LewisThe Washington PostAugust 5th, 201285 years ago, the US Supreme Court ruled that state governments could force involuntary surgical sterilizations; Virginia lawmaker Patrick Hope calls for “a symbolic payment” for the living victims.
NY Law Expanding DNA Database Takes Effectby Dan WiessnerReutersAugust 1st, 2012Almost anyone convicted of a crime in New York is now required to submit a DNA sample to the state's sweeping criminal database.
Supreme Court May Review Case over DNA Samplesby Jonathan Stempel and Terry BaynesReutersJuly 30th, 2012The Supreme Court signaled on Monday that it may review whether law enforcement officials may collect DNA samples from people who have been accused, but not convicted, of serious crimes.
Federal Court Taking Second Look at Calif. DNA Lawby Associated PressYahoo NewsJuly 26th, 2012A federal appeals court decided to take another look at a California law that requires DNA samples to be taken from anyone arrested for a felony, not just after a conviction.
"Tainted Families" Ancient and Modernby Pete ShanksBiopolitical TimesJuly 11th, 2012Paul Lombardo has well summarized the use of the "Jukes family" myth to promote eugenics, in the 19th, 20th and now 21st century.
North Carolina Survivors of Eugenic Sterilization are Passed Over Againby Jessica CussinsBiopolitical TimesJune 28th, 2012The North Carolina Senate has turned down compensation for living victims of the state-sponsored forced sterilization program that continued into the 1970s.
Payments for Victims of Eugenics Are Shelvedby Kim SeversonThe New York TimesJune 20th, 2012North Carolina’s effort to compensate people who were sterilized under a widespread eugenics program that stretched into the 1970s all but died in the State Senate on Wednesday.
When California Decided Who Could Have Children and Who Could Notby Jeremy RosenbergLos Angeles TimesJune 18th, 2012California's "Asexualization Act" of 1909 gave the go-ahead for the state to sterilize more than 20,000 men and women against their will.
Court Dismisses Suit Over Unethical US Experimentsby Richard MonasterskyNature News BlogJune 15th, 2012A US court has dismissed a lawsuit by Guatemalan citizens against US officials in connection with unethical medical experiments conducted by American researchers in the 1940s.
Genome Test Slammed for Assessing ‘Racial Purity’by Alison AbbottNatureJune 12th, 2012Hungary’s Medical Research Council has asked public prosecutors to investigate a genetic-diagnostic company that certified that a member of parliament did not have Roma or Jewish heritage.
Bay Area Artist Looks to Biopolitical Issues for Inspirationby Jessica CussinsBiopolitical TimesJune 7th, 2012Bay Area artist Doug Minkler addresses concerns about synthetic biology and the corporatization of scientific research in his socially conscious posters.
How Our Genetic Maps Are Being Sold to the Highest Bidder by Patricia J. WilliamsThe Nation June 6th, 201223andMe's first patent forces the question, who owns our bodies?
N.C. House Approves Measure Compensating Victims of Eugenics Programsby Lynn BonnerNews ObserverJune 5th, 2012In a 86-31 vote, the state House approved a measure that will compensate people sterilized by a state authority over four decades ago.
European Crisis Bolsters Illegal Sales of Body Parts by Dan BilefskyThe New York TimesJune 1st, 2012Vulnerable, desperately poor people are seeking to sell their kidneys, lungs, bone marrow or corneas.
Revealed: How More and More Britons are Paying Indian Women to Become Surrogate Mothersby Shekhar BhatiaThe Telegraph (UK)May 26th, 2012The sheer scale of the “baby factory” phenomenon is now causing concern with the Indian government. There are up to 1,000 unregulated clinics, comprising an industry worth as much as £1.5 billion a year.
German Doctors Apologize for Holocaust Horrorsby Art CaplanMSNBCMay 24th, 2012The German Medical Association has issued a remarkably blunt and straightforward apology, more than six decades after the end of World War II, for the role it played during the Holocaust.
DNA Study Seeks Origin of Appalachia's Melungeonsby Travis LollerAssociated PressMay 24th, 2012Varied claims have been made about the origins of a group of dark-skinned Appalachian residents. Some thought they originally came from Portugal, but a new DNA study shows a different story.
California Considers DNA Privacy Lawby Helen ShenNatureMay 18th, 2012California lawmakers are considering a bill that would require written consent for the collection, retention, and sharing of individual genetic information. Academic researchers fear the measures would prohibit work with genetic databases.
Surrogate Mother Dies of ComplicationsTimes of IndiaMay 17th, 2012Premila Vaghela, who became a surrogate in order to supplement her family income and brighten the future of her own two kids, died due to unexplained complications.
The Real Chen Guangcheng Story: Forced Abortion, Eugenics, and the One-Child Policyby Daniel SharpBiopolitical TimesMay 16th, 2012Amidst focus on the domestic and international political aspects of the Chen Guangcheng affair, the media have missed the real issue: forced abortion and forced sterilization in China.
DHS Considers Collecting DNA From Kids; DEA and US Marshals Already Doby Jennifer LynchElectronic Frontier FoundationMay 14th, 2012The Department of Homeland Security is considering collecting DNA from kids ages 14 and up—and is exploring expanding its regulations to allow collection from kids younger than that.
A Crime Against Motherhood: Involuntary sterilization was a horrifying exercise in genetic engineeringby Nilmini Gunaratne RubinLos Angeles TimesMay 13th, 2012On Mother's Day, a daughter tells how eugenics and forced sterilization affected her family.
What Money Can't Buy: The Moral Limits of Markets – New Book by Noted Scholarby Sona MakkerBiopolitical TimesMay 2nd, 2012What Money Can't Buy: The Moral Limits of Markets, the new book by leading philosopher Michael Sandel, explores the consequences of a society in which everything and anything has a price tag.
Disturbing Reports of Government-led Forced Sterilization in Uzbekistanby Daniel SharpBiopolitical TimesMay 1st, 2012The BBC breaks news of a government-sponsored coercive sterilization campaign in Uzbekistan.
Maryland Law Enforcement Agencies Still Collecting DNA Samplesby Yvonne WengerBaltimore SunApril 25th, 2012Despite a recent court ruling by the state's top court, Maryland police say they will continue to collect DNA samples from people arrested but not convicted for certain crimes.
California Genetic Privacy Bill Moves Forward – Padilla’s SB 1267 to Protect a Person’s DNAby Valerie GottenCalifornia NewswireApril 24th, 2012California moves one step closer to passing comprehensive genetic privacy legislation, as the proposed bill clears a sub-committee hurdle.
New Initiative Aims to Boost Human Rights Standards for DNA Forensicsby Daniel SharpBiopolitical TimesMarch 8th, 2012GeneWatch UK, Council for Responsible Genetics, and Privacy International launch a new collaborative initiative on DNA forensics.
Non-Consenting AdultsThe Nuremberg Code, set up to protect the human subjects of research, is being routinely ignoredby Harriet A. WashingtonSlateJanuary 22nd, 2012Marginalized groups have frequently been coerced into studies that violate their right to consent. Now such practices are spreading.
Make Me a Baby As Fast As You CanHow a California surrogacy operation streamlines baby production by implanting clients’ embryos in two Indian surrogates at the same timeby Douglas PetSlateJanuary 9th, 2012If for-profit companies are going to continue to approach baby-making like an import-export business, maybe it’s time for governments to start treating it that way, adapting oversight and protections for all parties involved.
Genetic Discrimination and Ron Paulby Emily BeitiksBiopolitical TimesJanuary 9th, 2012Genetic discrimination in Canada today is similar to what the US faced prior to the Genetic Information Nondiscrimination Act of 2008, opposed by presidential candidate Ron Paul.
12 MP Doctors Let Off with Rs.5,000 [$94] Fine for Conducting Illegal Drug Trialsby Anup DuttaIndia TodayJanuary 2nd, 2012Twelve government doctors in India face only a $94 fine for allegedly conducting drug trials on vulnerable patients without consent. Many suffered side effects and some lost their lives.
Payment for Bone Marrow Donors?by Pete ShanksBiopolitical TimesDecember 8th, 2011A federal appeals court has ruled that in certain circumstances it may be legal to pay for materials used in bone marrow transplants; Professors Greely and Capron respond.
The Life Penalty: Sterilizing Californiaby Kris PickelCBS SacramentoNovember 10th, 2011From 1909 to 1964, California laws not only allowed for, but also expanded, the practice of sterilization, where people were forced to undergo the procedure for a wide range of reasons.
Victims speak out about North Carolina sterilization program, which targeted women, young girls and blacksby Michelle Kessel and Jessica HopperRock CenterNovember 7th, 2011Victims of eugenic sterilization speak out in North Carolina, where they have yet to receive compensation, medical care or counseling from the state.
Organ Gangs Force Poor to Sell Kidneys for Desperate Israelisby Michael Smith, Daryna Krasnolutska and David GlovinBloomberg Markets MagazineineNovember 1st, 2011Global organ trafficking is on the rise. Many poor people donate in hopes that it will provide a means for escaping poverty but eventually find their situation worse off in the end.
Kidney Broker Said to Use Johns Hopkins in Organ-Traffic Caseby David Glovin, David Voreacos and Michael SmithBloomberg BusinessweekNovember 1st, 2011An Israeli man pleaded guilty yesterday to three counts of organ trafficking and one count of conspiracy, becoming the first person convicted in the U.S. of organ trafficking.
Moral Obligations For Thee But Not For Me?by Pete ShanksBiopolitical TimesOctober 27th, 2011Calls for the general public to volunteer for clinical trials sit strangely with the behavior of some pharmaceutical companies and physicians.
Police cite privacy concerns over their own DNAby Dave CollinsChicago Tribune via Associated PressOctober 16th, 2011Many police officers are concerned that they are being required to give DNA samples, purportedly used to remove their DNA from a crime scene, but civil liberties protections are vague.
DNA Forensics: Setting the (Fool’s) Gold Standardby Doug PetBiopolitical TimesOctober 13th, 2011Emerging DNA forensic techniques require urgent scientific and legal scrutiny.
Sex Selection Blares on World Bank’s Radarby Doug PetBiopolitical TimesSeptember 21st, 2011The World Bank’s 2012 World Development Report, entitled “Gender Equality and Development” recognizes sex selection as a global issue perpetuating gender inequality.
Dorothy Roberts book presentation [video]Fatal Invention: How Science, Politics, and Big Business Re-create Race in the Twenty-first Century Co-sponsored by Center for Genetics and Society and Generations Ahead Tuesday, September 20, 2011 | Berkeley, CA
Noteworthy Victory Against Genetic Discrimination Goes Unnoticed by Emily BeitiksBiopolitical TimesSeptember 8th, 2011The California Genetic Information Nondiscrimination Act has now been signed into law, but press coverage has been non-existent.
California Governor Signs Padilla Bill to Prevent Genetic Discrimination – Unruh Civil Rights Act Modernized to Reflect 21st Centuryby Valeria GottenCalifornia NewswireSeptember 7th, 2011California Senate Bill 559, a landmark civil rights protection bill, was signed into law by Governor Jerry Brown Tuesday night.
More on the Guatemala Syphilis Scandalby Pete ShanksBiopolitical TimesSeptember 1st, 2011The Presidential Commission for the Study of Bioethical Issues concluded its investigation of the horrifying Guatemalan syphilis experiments this week, and began to consider some new regulations.
A Noteworthy Victory against Genetic Discriminationby Emily BeitiksBiopolical TimesAugust 24th, 2011The California State Senate approved a bill by Senator Alex Padilla, making genetic discrimination illegal and expanding upon federal protections.
'Explosive' Growth in Foreign Drug Testing Raises Ethical Questions by Talea MillerPBS News HourAugust 23rd, 2011The Department of Health and Human Services reports more than a 2,000 percent increase in the number of foreign trials for U.S. drugs over the past two decades.
New Book on the Biopolitics of Raceby Osagie ObasogieBiopolitical TimesAugust 18th, 2011Dorothy Roberts' new book meets an urgent need: encouraging greater thought and public discussion on what new genetic technologies mean for society’s understanding of racial difference and its commitment to racial justice.
Eugenics Victim, Son Fighting Together for Justiceby Allen G. BreedABC NewsAugust 15th, 2011Eugenics victim and son see long struggle for justice and recompense on verge of bearing fruit.
Regulating the "Global Baby"by Pete ShanksBiopolitical TimesAugust 4th, 2011George Annas analyzes last year's Canadian Supreme Court decision about regulating assisted reproduction, and the implications for the U.S. and other countries.
"I Know It's a Girl, and I Need Your Help To Get It Out of Me."by Sunita PuriSlateAugust 2nd, 2011Sex selection happens in the United States, too—and doctors need better guidelines for dealing with it.
Al Jazeera’s Fault Lines on Outsourcing Clinical Trialsby Osagie ObasogieBiopolitical TimesJuly 19th, 2011Fault Lines’ Zeina Awad offers a compelling inside look into the questionable business of using vulnerable populations from the developing world to test drugs that will not benefit them and will largely be consumed by Westerners.
Victims of state's eugenics program win sympathyby Regina WangNewsobserver.comJune 23rd, 2011From the 1920s to the 1970s, the North Carolina Board of Eugenics oversaw the sterilization of nearly 7,600 people.
X-Men Recharge: People in the Margin or Powers on a Pedestal?by Brendan ParentBiopolitical TimesJune 22nd, 2011Last week's release of 'X-Men: First Class" may be cause for questioning the whole premise of the X-Men series: Would people marked by genetic advantages actually experience group discrimination?
The Consequence of Unnatural Selection: 160 Million Missing Girlsby Marcy DarnovskyMs. Magazine BlogJune 6th, 2011Mara Hvistendahl's new book provides a deeper understanding of sex selection around the world and makes an urgent case for confronting it.
The Pratten ruling: An anonymous sperm provider’s son explains why it matters by Barry Stevens, Biopolitical Times guest contributorJune 2nd, 2011Along with the majority of my fellow offspring, I believe that it is wrong to use anonymous gamete providers in assisted conception. And the most common argument against an open system - that the number of egg and sperm donors will go down - is contradicted by the evidence.
President’s Bioethics Commission Continues Review of Guatemalan Syphilis Experimentsby Spencer McFarlaneBiopolitical TimesMay 26th, 2011Is the U.S. Government’s exploitation of human subjects a thing of the past?
Axing Gamete Donor Anonymity: British Columbia Ruling Reflects Growing Global Conversation by Jillian TheilRH Reality CheckMay 26th, 2011A British Columbia judge has ruled that anonymity for gamete donors in the Canadian province is unconstitutional.
Rights watchdog calls for halt to DNA testing[Canada]CBC NewsMay 25th, 2011Canada's civil liberties watchdog is calling on investigators in a murder investigation to immediately stop voluntary DNA sampling, calling the practice coercive.
Re-Evaluating Risks and Benefits in Human Subjects Researchby Jonathan Kahn, Biopolitical Times guest contributorMay 25th, 2011Ethical review in bioethics needs to be reconsidered in a broader context, especially given the limitations in practice of unbalanced risk/benefit analysis.
Annals of Human Genetics Does A Little “House Cleaning.” Sort Of.by Osagie ObasogieBiopolitical TimesMay 19th, 2011In a former incarnation, a well-respected scholarly journal promoted eugenics. It has now put its archives online.
Supreme Court: DNA database retention regs are unlawful[United Kingdom]by Lewis PageThe RegisterMay 18th, 2011However the court, noting that Parliament is considering the matter, has declined to specify any remedy for the situation.
Desperate Americans Buy Kidneys From Peru Poor in Fatal Tradeby Michael SmithBloomberg Markets MagazineMay 11th, 2011The illegal organ trade is the ugly side of the otherwise legal medical tourism industry, in which people travel to other countries for cut-rate hip replacements, tummy tucks and gastric bypasses.
Hijacking Human Rights in Latin Americaby Gina Maranto, Biopolitical Times guest contributorMay 3rd, 2011Prominent Catholic politicians and scholars are using human rights discourse to strengthen a transnational initiative to restrict reproductive rights.
Freedom’s Just Another Word for . . . Restriction?by Alice DregerBioethics ForumApril 27th, 2011Bioethics has not traditionally been a field featured in cases involving questions of academic freedom, but the University of Minnesota appears to be trying to silence Carl Elliott.
Another Expansion of DNA Databases: South Korea Collects DNA from Labor Unionistsby Jillian TheilBiopolitical TimesApril 14th, 2011South Korea is expanding its DNA database to include labor activists, which is proving controversial, while the US and other countries try to define the scope of their own.
Doctor Abandons US Patent Application[Solomon Islands]Solomon Times April 11th, 2011The Network of the Indigenous Peoples-Solomons welcomes the abandonment of a US patent application that uses genetic samples from Solomon Islanders, in a case that raises major ethical questions.
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