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About Disability & Human Biotechnology


Disability rights advocates have been among the earliest and most vocal critics of emerging genetic and reproductive technologies. Many people with disabilities are acutely aware that technologies enabling the selection of “good” genes and “normal” traits can devalue disabled people’s bodies and ultimately their lives.

This concern is informed by past and ongoing discrimination against people with disabilities that often includes brutal practices. For example, twentieth-century eugenicis­ts in the United States and some European countries sponsored programs that sterilized tens of thousands of disabled people. The Nazi genocide began with doctors and nurses exterminating over 100,000 disabled people in German medical facilities; tens of thousands more perished in concentration camps.

This historical context gives pause to disability rights advocates concerned about existing selection technologies that are increasingly being used to prevent the birth of children with particular traits, as well as future technologies that could be used to modify children’s genes.



EEOC Files and Settles Its First GINA-based Employment Discrimination Lawsuitby Jennifer K. WagnerGenomics Law ReportMay 13th, 2013Although individuals have brought complaints against employers alleging violations, this is the first lawsuit initiated by the EEOC to enforce the Genetic Information Nondiscrimination Act.
Talking Biopolitics is Back!by Jessica CussinsBiopolitical TimesMay 13th, 2013A series of live web-based conversations with cutting-edge thinkers on the social meaning of human biotechnologies will be kicking off next week. RSVP now to join the conversations!
Dad Aims to Change Views of Down Syndrome in New Bookby Jessica Ryen DoyleFox NewsMay 11th, 2013George Estreich's new book, The Shape of the Eye, aims to change the negative connotations associated with Down syndrome.
Prenatal DNA Sequencingby Antonio RegaladoMIT Technology ReviewApril 23rd, 2013Reading the DNA of fetuses is the next frontier of the genome revolution. Do you really want to know the genetic destiny of your unborn child?
Tough Calls on Prenatal Tests by Christopher WeaverWall Street JournalApril 3rd, 2013New prenatal gene tests are reshaping care for expectant mothers, but their rapid rollout has raised fears that poorly understood results could lead to confusion among patients and doctors.
Surrogate Offered $10,000 to Abort Babyby Elizabeth CohenCNNMarch 6th, 2013A surrogate refused to have an abortion after severe abnormalities were spotted on an ultrasound and moved to Michigan, where she became the legal mother.
Meet the New Eugenics, Same as the Old Eugenicsby Gina Maranto, Biopolitical Times guest contributorBiopolitical TimesMarch 4th, 2013According to a new wave of eugenic advocacy, “we” have a “moral obligation” to enhance future generations.
Selling the Story: Down Syndrome, Fetal Gene Testing, and The Today Showby George Estreich, Biopolitical Times guest contributorBiopolitical TimesFebruary 28th, 2013On The Today Show, a couple learns the results of a noninvasive prenatal test. Left unanswered are questions about the effects of new technologies, and how those technologies are sold.
A Call for International Prohibition of Forced Genital-Normalizing Surgery and Sterilizationby Jessica CussinsBiopolitical TimesFebruary 21st, 2013A new report from the United Nations Special Rapporteur on Torture focuses on human rights abuses in health-care settings, and bolsters LGBTQI activists in their fight against involuntary sterilizations and genital-normalizing surgeries.
Parents of Down's Syndrome Woman, 21, Can NOT Have her Sterilised, Rules Judge by Daniel MillerDaily MailFebruary 16th, 2013In a landmark ruling in London, the sterilization of a woman with Down's syndrome at her parents' request was ruled 'disproportionate' and in violation of her human rights.
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