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About Human Rights & Human Biotechnology


Claims to universal human rights depend, in part, on formal recognition of our common humanity. Many countries use human rights as a broad framework to think about regulatory options for human biotechnologies. International declarations also commonly use this framework. Examples include the Council of Europe's Convention on Human Rights and Biomedicine and UNESCO's Universal Declaration on the Human Genome and Human Rights.

The Convention on Biomedicine and Human Rights, like a number of other international agreements and declarations, rejects biotechnology applications that would alter the genomes of future generations. Manipulating genes in a manner that encodes inequality into our genes could easily unravel centuries of progress toward respecting human worth.



Closing the Information Gap on International Surrogacy[Quotes CGS's Marcy Darnovsky]by Elayne CliftWomen's Media CenterJuly 16th, 2014The Center for Genetics and Society and Our Bodies Ourselves are teaming up to shed light on the human rights aspects of cross-border surrogacy.
Should We Design Our Babies? [VIDEO] [With CGS's Marcy Darnovsky]The Aspen InstituteJuly 2nd, 2014At the Aspen Ideas Festival, Marcy Darnovsky and Nita A. Farahany discuss the possibility and implications of "designer babies."
Deadline Looms for NC Eugenics Victims Paymentsby Jerome Batley jrAssociated PressJune 26th, 2014North Carolina is the first of 33 states that ran forced sterilization programs to compensate victims. 520 people have come forward.
Eugenics Reparations Removed from Budgetby Joyce LiptrapLetter to the Editor, News LeaderJune 25th, 2014Virginia House Bill 1529: Justice for The Victims of Sterilization would have created a fund for reparations to Virginia residents physically mutilated at the hand of state funded institutions.
'Shoebox IVF' Hope for Infertile Couplesby Cathy EdwardsBBCJune 21st, 2014Infertility has been neglected in developing countries, partly because of a focus on controlling overpopulation. But experts argue that true reproductive health has to address both sides.
Female Prison Inmates Sterilized Illegally, California Audit Confirms by Corey G. JohnsonCFIRJune 19th, 2014The California state auditor blasted federal and state oversight of sterilization surgeries for female prison inmates, finding numerous illegal surgeries and violations of the stateís informed-consent law.
Vasectomies Should Not Be Used as Punishmentby Amanda MarcotteSlateJune 18th, 201420 months in prison, five years of probation, and a vasectomy. As part of his plea deal, Jesse Lee Herald had to agree to get snipped when he got out of jail.
Children of Surrogacy Campaign to Outlaw the Practiceby  Jane RidleyNew York PostJune 16th, 2014"You canít sell your kidney for profit but you can purchase an egg or sell a child. There needs to be more checks and balances."
Who Owns Your Genetic Data? Hint: It's Probably Not Youby Meredith SalisburyThe Huffington PostJune 12th, 2014It seems intuitive to many of us that each person owns his or her genetic data and therefore should control access. But the reality is more complex.
Should Research Subjects Be Given Their Genetic Test Results?by Margaret LutzeGuardian Liberty VoiceJune 12th, 2014Two study groups agree that the answer turns on whether or not the research subject consented to the return of their genetic information.
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