Public Interest Group Welcomes Bill to Ensure Stem Cell Institute’s Promises
 | | Sen. Sheila Kuehl |
Center for Genetics and Society says California agency must
provide for affordable treatments and returns to the state The
Center for Genetics and Society, a public interest group, today
welcomed the introduction of a bipartisan bill to the California
Legislature to ensure that the state receives a share of profits, as
well as discounted prices to any treatments, from publicly funded stem
cell research.
“If a biotech company is making
billions of dollars of profit from state-financed research, the people
should receive a fair return on their investment, as well as access to
any therapies,” said Jesse Reynolds, a policy analyst at the Center.
Senate
Bill 771, introduced yesterday by Senators Sheila Kuehl (D-Santa
Monica) and George Runner (R-Antelope Valley), specifies that minimum
percentages of revenue from the licensing of products developed with
grants from the California Institute for Regenerative Medicine (CIRM)
be returned to the state. It also requires that such products be
offered at discounted prices to the state’s publicly funded health care
programs.
"The stem cell institute has said it
looks forward to working with the Legislature, but in the past its
leadership has been combative,” Reynolds said. “Let’s hope they have a
new attitude.”
Deborah Ortiz, a former Senator
and a vocal proponent of Proposition 71, introduced similar bills in
recent legislative sessions, but the CIRM leadership strongly fought
these efforts.
“The Proposition 71 campaign
sponsored and advertised an economic report claiming the state would
receive up to a billion dollars from sharing revenue,” Reynolds
continued. “But after it was approved, the leadership of the stem cell
institute that it established tried to back out. This would have been a
billion-dollar bait and switch. The bill will make significant steps
toward fulfilling these promises.” The study claimed that if the
state received a 2% to 4% share of revenues, it would garner $537
million and $1.1 billion. In a recent critique, the former chair of the UC Berkeley Department of Economic, Richard Gilbert, estimated a range twenty times lower.
The Center for Genetics and Society is a public interest
organization advocating responsible use and effective societal
governance of the new human biotechnologies. It supports human
embryonic stem cell research and public funding for it, but has raised
concerns about the conduct, oversight, and implications of stem cell
research. CGS has been a prominent critic of the $3-billion California
stem cell research program. For more information, see our website at www.genetics-and-society.org and our blog, Biopolitical Times, at www.biopoliticaltimes.org.
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