Californians Aware, Greenlining Institute, California Nurses Association, CalPIRG, and Redefining Progress Support Lee-Halpern Petition on Ethical Stem Cell Research
Public Interest Groups Call on California Stem Cell Institute to Adopt Reforms Requested in Petition by Former US Assistant Secretary for Health and Public Interest Attorney
OAKLAND, CALIF. -- February 28, 2005 -- Who: Leading
California public interest organizations have announced their
support for a petition asking the California Institute for Regenerative
Medicine (CIRM) to adopt higher standards concerning conflict
of interest, open meetings, hiring and compensation. The California
Nurses Association, CalPIRG, Redefining Progress, Californians
Aware, and the Greenlining Institute have joined the Center
for Genetics and Society and the Pro-Choice Alliance for Responsible
Research in supporting the petition filed on February 16 by
Dr. Philip Lee, a former federal Assistant Secretary for Health,
and Charles Halpern, a public interest attorney.
The groups also urge the CIRM's Independent Citizens' Oversight
Committee (ICOC) to engage in a full public debate on the petition.
What/Where/When: The ICOC will consider the
petition at its meeting this Tuesday, March 1, 2005 from
9:00 a.m. - 5:30 p.m., at Stanford University's Fairchild Auditorium,
291 Campus Drive, Stanford, CA. The complete agenda is available
at http://www.cirm.ca.gov.
Representatives of several of the public interest organizations
supporting the initiative will hold a press briefing at Fairchild
Auditorium at 12:00 noon (during the ICOC meeting's scheduled
closed session or lunch break), and will be available after
the conclusion of the ICOC meeting at 5:30 p.m.
Californians Aware, an organization that supports and defends
open government, has emphasized the importance of CIRM's working
groups adhering to the standards of California's open meeting
and conflict of interest laws, notwithstanding exemptions written
into Proposition 71, which created the stem cell institute.
"The function of the Working Groups is overwhelmingly a
public one, and their role is traditionally a public one,"
said Terry Francke, general counsel for Californians Aware.
"Moreover, public access to the Working Groups acts as
vital insurance against conflicts of interest and in any event
is protected by the California Constitution. The ICOC would
be wise to put this issue behind it, avoid the needless risk
to the finality of its decisions, and adopt proposed regulations
4 and 5 in the Lee-Halpern Petition."
The Greenlining Institute, a public policy, research, and advocacy
organization, is concerned about the diversity and compensation
issues raised by the Lee-Halpern petition. The ICOC "is
admittedly not reflective of California's diversity," said
Robert Gnaizda, general counsel for The Greenlining Institute.
"This has been compounded by the failure to ensure effective
diversity on the first nine hires and apparently in the recommendation
of the Interim President."
Greenlining is also concerned that salaries offered to employees
of the ICOC, a public agency, are at the high end of private-sector
compensation. "Greenlining supports the petition's position
that a cap on salaries should be approved by the ICOC of a maximum
of $290,000. However, Greenlining would argue that even this
salary is unnecessary, since the Director of the National Institutes
of Health, who directs 16,000 employees and administers a budget
ninety times larger than the California Institute of Regenerative
Medicine budget, earns only $175,000," said Gnaizda.
"Lee and Halpern have made important specific recommendations,
and the appointed ICOC members have an obligation to the public
to make sure that discussion of the petition takes place in
a public forum," said Pro-Choice Alliance For Responsible
Research co-founder Susan Berke Fogel. "Delegating authority
to the chair to respond would ensure only more secrets. The
public was promised openness and transparency, not more closed-door
meetings."
Michel Gelobter, executive director of Redefining Progress,
also spoke in support of the petition. "Public resources
should generate public wealth," Gelobter said. "This
petition seeks minimum safeguards to ensure that the health
and wealth of all Californians is a priority in this groundbreaking
program."
Created after the expenditure of over $30 million to pass Proposition
71 in November, CIRM will issue $3 billion in grants for embryonic
stem cell and other biomedical research.
"Many of CIRM's leaders still seem not to realize that
the stem cell institute is a public agency, and that they are
now public officials," said Marcy Darnovsky, associate
executive director of the Center for Genetics and Society. "The
outcry about CIRM's built-in conflicts of interest and lack
of transparency will continue to build until the institute's
leaders begin operating in a manner befitting the trust, hopes,
and resources that the people of this state have given them."
About the Center for Genetics and Society
The Center for Genetics and Society is a public interest advocacy
organization that works to encourage responsible uses and effective
societal governance of human biotechnologies such as embryonic
stem cell research.
The complete text of Californians Aware letter in support of
the Lee-Halpern petition is available at http://calaware.org/news/weekly_detail.jsp?article_id=535.
The complete text of Greenlining Institute's letter in support
of the Lee-Halpern petition is available at http://www.genetics-and-society.org/policies/california/leehalpern20050216greenlining.html.
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